This is the homepage of 3TU.Centre for Ethics and Technology. Also known as 3TU.Ethics, the centre focuses on the philosophy of science, technology and engineering. It is a collaboration of the philosophy departments of the following three universities in the Netherlands: Eindhoven University of Technology; Delft University of Technology; and the University of Twente. This website informs visitors of news and events; and about the research programmes and projects undertaken by the centre. They may access a selection of recent publications by staff members. A publication database is provided. There is also information about recent publications in the field. Links are provided to relevant websites. A search engine is available.
'Abortion and ethics' is a website that provides a range of resources on the topic of abortion. It displays, among other things, a number of video presentations which discuss the moral issues raised by abortion. It also makes available court decisions; powerpoint presentations; legislative and religious documents; online surveys; news updates; suggested topics for classroom discussions; and links to relevant websites. There are also online full-text articles, and a bibliography of print-based articles, books and essays. The resource is part of the Ethics Matters website which is maintained by Dr. Lawrence M. Hinman, a professor of philosophy at the University of San Diego.
'Advisory Committee on Human Radiation Experiments' is a website which provides detailed information about the activities of the 14-member committee which was set up in 1994 to investigate claims of unethical practices in human radiation experiments by the U.S. government between the 1940s and the 1970s. It was chaired by Ruth M. Faden, the Philip Franklin Wagley Professor of Biomedical Ethics at Johns Hopkins University. The site is maintained by the National Security Archive at The George Washington University and contains, among other things: background information about the experiments; information on the aims and composition of the committee; and transcripts of their reports. A useful resource for those interested in medical and research ethics.
This is the American Medical Association (AMA)'s webpage on medical ethics. It contains: information about the mission and organization of its Ethics Group; the Association's Code of Medical Ethics; a bulletin of upcoming ethics events; and a downloadable copy of the professional oath it drafted for the 21st century entitled 'Declaration of Professional Responsibility: Medicine's Social Contract with Humanity' (also available in French; German; Japanese, Mandarin and Spanish). Access is given to the full-text of all articles featured since 1999 in Virtual Mentor, the AMA's Ethics Journal. Viewers are further apprised of the Association's plans to: enhance professionalism, encourage physician volunteerism, and improve public health.
This is the online version of a research report entitled 'Ambivalent GM nation? Public attitudes to biotechnology in the UK, 1991-2002' published in July 2003. A constituent of the Life Sciences in European Society project, the research addresses issues like the media's portrayal of genetically modified food, the factors behind opposition to genetic modification, and the development of attitudes to applications of biotechnology in the last decade of the twentieth century. The report, which is in PDF format, starts with a short summary of the history of biotechnology and GM foods, and of the research itself. The main content is delivered in five parts: an introduction; media coverage of biotechnology; public perceptions; implications for GM nation; and sources and further information. The research was led by Professor George Gaskell of the London School of Economics and Political Science (LSE).
This is the homepage of the American Scientific Affiliation (ASA). The organization was established in 1941 to study matters relating to the intersection between science and the Christian Faith, and to disseminate the results resulting from those investigations. This website contains information about their history, mission and membership. Visitors are allowed access to numerous resources. These include: the full-contents of their official journal 'Perspectives on Science and Christian Faith' (PSCF) and their bimonthly newsletter which is published jointly with the Canadian Scientific and Christian Affiliation (CSCA). There are pages dedicated to discussion of the following topics: Bible and Science; Creation/Evolution; and Whole Person Education Embracing Science and Faith. Visitors may here access resources like articles and audio/video recordings of lectures. The website also links them to the homepages of relevant organizations. A search engine is available.
This is the homepage of the American Society for Bioethics and Humanities (ASBH). The organization was established in 1998 to encourage interdisciplinary and interprofessional collaboration amongst those working in the fields of medical ethics and the health-related humanities. The site provides general information about the organization and its membership, and gives access to a small number of handbooks. Of particular use to students of medical ethics are lists of annotated links to relevant websites arranged under the following themes: Academic Centres and Programs; Government and Public Policy; History of Medicine; Law; Medicine and the Humanities; Online Texts and Resources; Organizations and Networks; and Science and Technology.
'Animal Ethics Infolink' is a website maintained by the New South Wales' Department of Primary Industries and Animal Research Review Panel. Its primary objective is to assist those working in animal ethics committees in New South Wales by providing them with helpful information about the latest legislation and policies which govern their work. The site would nevertheless be of use to anyone researching on or interested in the ethical issues involved in the use of animals in scientific research. It allows access to a number of useful resources including: the Australian Code of Practice for the Care and Use of Animals for Scientific Purposes and other codes of practice; information on the role and types of Animal Ethics Committees; newsletters and annual reports; and annotated links to online courses and educational materials and other websites of interest. The site provides a search engine.
'Animal Welfare and Ethics Resources for Youth and College Agricultural Educators' is an online document which offers useful information about the range of teaching and learning resources available on animal welfare and ethics. It provides a list of audiovisuals relating to the care and welfare of animals in general, and of livestock like cattle, horses, sheeps and goats. Details are also given of books, proceedings, bibliographies and articles that cover issues like livestock ethics, and the transportation and handling of farm animals. There are annotated links to other websites and the homepages of relevant organizations. The document is part of a series of resources published by the US Department of Agriculture's Animal Welfare Information Centre (AWIC).
This website allows full access to 'Animals and Alternatives in Testing: History, Science, and Ethics', a book written by Joanne Zurlo, Deborah Rudacille and Alan Goldberg. Published by Mary Ann Liebert Inc. in 1994, the work is organised under the following chapter headings: Science and Society; The Eye of Science; Toxicology and Toxicity Testing; Science In Vitro; and Animal Experimentation: Ethics and Law. Also available are the bibliography; glossary of terms and appendices. The site is maintained by the Center for Alternatives to Animal Testing (CAAT) at the Johns Hopkins University, USA. A useful resource for those interested in research ethics.
This website makes available the full-text of the Assisted Dying for the Terminally Ill Bill. It was introduced as a private members bill by Lord Joel Joffe, a retired human rights lawyer, in the wake of heart-rending cases like those of Diane Pretty's and Reginald Crew's. The bill seeks to make it lawful for doctors to assist terminally ill patients to end their lives. The contents, divided into 16 sections, could be downloaded from the site without charge. The resource would be of interest to those studying ethics at the end of life.
'Atlas Shrugged' is a free website providing materials for the study of Ayn Rand's 1957 novel of the same name. Published by the Ayn Rand Institute, this website provides an accessible study-guide to an influential novel that has sold six million copies and continues to sell 185,000 copies each year. The website is best used after a full reading of the novel, since it contains numerous 'plot spoilers'. The website contains a 'History of Atlas Shrugged', audio commentaries and recordings, a chapter-by-chapter video examination of the themes and ideas to be found in the novel, a full profile of Rand and her works, and links to a handful of selected external websites.
This Austin Community College Library Research Guide offers an interesting selection of annotated links to medical ethics resources on the Internet. These are organised into the following subject headings: general medical ethics; abortion; animal testing; death, dying, and hospice; human cloning; euthanasia/assisted suicide; medical records; palliative care and pain; and religious bioethics. The site also offers RSS feeds detailing recent articles, although some of the material linked to is only accessible to Austin students, and some only to members of institutions subscribing to the relevant journals.
This is an online exhibition on the Tuskegee Syphilis Study which was carried out by the US Public Health Service between 1932 and 1972. In its aim to document how syphilis spreads and kills, the work enlisted the participation of 399 African Americans in Alabama who were suffering from the disease. Told only that they were being treated for 'bad blood', all forms of known therapy were deliberately withheld from them. The deception, described as 'deeply, profoundly, morally wrong' by Bill Clinton in the official apology issued to the victims and their family members on behalf of the US Government in 1997, remains one of the most disturbing episodes in the history of medical research and experimentation. This website makes available the Final Report of the Tuskegee Syphilis Study Legacy Committee produced on the 20th of May 1996 and provides links to the full transcript of the Presidential Apology and other relevant sites.
This BBC News website depicts Africa's ongoing and serious struggle with the AIDS epidemic. Through resources like correspondents' despatches, audio-video recordings and interviews, it firstly gives an overview of how widespread the problem is in the continent. It then takes a close look at the situation in South Africa, Uganda and Senegal. From there it draws attention to the issue of how and why important drugs are not reaching those who need them most. A factfile on AIDS, a discussion forum and links to the home pages of relevant organisations are also provided. The site is well-presented and easy to navigate. It is an interesting resource for health care ethics' students.
This interesting website on Euthanasia is presented by the BBC using reports from its news archive. The materials are organised into five fact files. The first gives an overview of euthanasia, a glossary of terms, and discusses the legal positions in the UK and Europe. The second puts across the views of those on opposing sides of the debate and of the medical profession. The third file studies a number of high profile cases including that of Dr David Moor, Annie Lindsell and Mary Ormerod. The fourth reports on what happens elsewhere particularly in jurisdictions that have legalised euthanasia. Attention is also drawn to the case of Dr Jack Kevorkian who was a strong proponent of physician-assisted suicide. The final file looks at the future and considers the position in law and practice, and issues like terminal care and the ageing population. The website also contains some reports that are available in audio and video forms, and offers links to the home pages of pro-life and pro-choice organisations and to websites dealing with the issue from the religious and medical perspectives.
This website provides the (unofficial) English translation of the Belgian Act on Euthanasia originally issued in Brussels on the 28th of May 2002. The Act contains 16 sections in all and euthanasia is there defined as "intentionally terminating life by someone other than the person concerned, at the latter's request". Other provisions include those on: the conditions for performing euthanasia and the procedures to be followed; advance directives; the need to notify the Federal Control and Evaluation Commission within 4 working days of performing the act; and the composition and responsibilities of the Commission. The resource, which is maintained by the Catholic University of Leuven, Belgium, would be useful for those seeking to learn how the subject of euthanasia is treated in other countries.
The Belmont Report is a set of ethical guidelines intended to protect human research subjects. The full text of the report is available from the website of the US-based National Institutes of Health's Office of Human Subjects Research. The report is the work of the US National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, which was created in 1974 to help identify the basic ethical principles that should underlie such research, and from there, to formulate guidelines that should be adhered to when these activities are undertaken. It was chaired by Dr Kenneth John Ryan of the Boston Hospital for Women. The report, released on the 18th of April 1979, contains background information about the commission and provides a summary of the basic ethical principles identified.
'BioCentre' is the homepage of the British think-tank set up in 1984 to promote ethical discussions related to developments in medicine, science and technology. Resources provided on this website include briefing papers; consultations; and articles on a diverse range of bioethics dilemmas (e.g infertility treatments; surrogacy; assisted suicide; prolonging the life of seriously ill newborns; advance directives; the status of the human embryo; euthanasia; stem cells; genetic testing; prenatal diagnosis; and xenotransplantation). Also accessible are the centre's newsletters; its monthly commentaries on current issues in bioethics; press releases; and details of past and forthcoming events. A search engine is available. This should be an interesting resource for students of medical ethics.
This is the homepage of BioEdge, an independent weekly newsletter which focuses on bioethical issues from around the world. It is published by New Media Foundation and edited by Michael Cook, a Melbourne-based journalist. This website allows access to materials published from December 2003 to the latest issue. It covers a wide range of topics which include: stem cell research; organ donation; therapeutic cloning; reproductive technologies; animal research; euthanasia; hybrid embryos; gene therapy; infanticide; sex selection; obesity; cosmetic surgery; surrogacy; and abortion. This should be an interesting resource for students of medical ethics as it provides them with up-to-date information about such developments from different parts of the world. The site provides a search engine and navigation is straightforward.
This is the website of the UNESCO Bioethics Programme which was launched in 1993. It informs readers about the initiatives and works undertaken by the International Bioethics Committee (IBC) and the Intergovernmental Bioethics Committee (IGBC). Further available are declarations (including the Universal Declaration on the Human Genome and Human Rights, and the International Declaration on Human Genetic Data); discussion papers; official statements and information about books issued by UNESCO on topics related to bioethics. There is also a searchable database which contains information about bioethics institutions around the world (including details of their activities and publications). An interesting resource for students of medical ethics.
This is the official website of Singapore's Bioethics Advisory Committee (BAC). The body was created in December 2000 to investigate and report on the ethical, legal and social issues surrounding biomedical research in Singapore. This website enables access to all the reports; consultation papers; press releases and speeches issued by the committee. Other resources made available are articles (which can be viewed in PDF format); brief notes on stem cell, cloning, human tissue research, genetics, biomedical sciences and bioethics; a list of FAQs; information on past and upcoming events; and partially annotated links to relevant Singaporean and international websites. This resource would be of interest to medical ethics students and researchers, especially those carrying out comparative work.
'Bioethics Discussion Pages' is a website hosted by Maurice Bernstein, M.D. Members of the public are here invited to pose questions and air their views regarding ethical misgivings arising from advances in biology and medicine. Responses are posted on these pages to encourage further discussion. Issues dealt with to date include: the transfer of patient information from one physician to another; participation in randomised clinical drug trial; refusal of unwanted treatment by pregnant women; commercialisation of eggs and sperms for reproduction; rights of insurance companies to genetic test results; and physician-assisted suicide. Polls are also taken on controversial issues, and their results and interpretations displayed on these pages. This would be an interesting resource for medical ethics students. Note, however, that the site does not seem to be updated regularly.
'Bioethics Education Project (BEProject)' is a website maintained by the Royal College of Physicians and Surgeons of Canada (RCPSC). The project, which aims to assist residents and their instructors in the teaching and learning of bioethics, is chaired by Drs Charles Weijer and David McKnight. The site contains background information about the project and information about the college's Web-based bioethics curriculum. It also offers a selection of case studies (with questions and discussion), along with a collection of primers on key topics like conflict resolution; moral theory and research ethics. A search engine is available. This should be an interesting resource for teachers and students of medical ethics.
Bioethics Forum aims to take advantage of the timeliness and liveliness of the internet to broaden and deepen discussion about bioethical issues. Maintained by The Hastings Center, this website contains diverse commentaries on a wide range of topical dilemmas in this area. These can be browsed according to Author's Name; Date (which goes back to 2006); and Subject. The Subject list includes the following topics: Bioethics; Bioethics and the Law; Caregiving; Human Bodies; Human Reproduction; Medical Research; Medicine and Business; Pharmaceutics; Research; Science and Society; and Science and Technology. The site also provides links to recent bioethics issues that make newspaper headlines. It holds a search engine. This should be an interesting resource for students of medical ethics.
Bioethics Port is a website created and maintained by Dr Andy Miah, a Reader in New Media and Bioethics in the School of Media, Language and Music at the University of the West of Scotland. It features movie clips and Miah's own web commentaries on a range of bioethical dilemmas that have been in the headlines. These include topics like abortion; artificial life; end of life issues; genetics; human cloning; stem cell; prosthesis; cognitive modification; and life extension. The site provides a list of FAQs and invites visitors to suggest clips for inclusion. It holds a search engine and contains information about Miah's recent publications. An interesting resource for students on medical ethics programmes.
This is the homepage of the Bioethics Research Library, formerly known as the National Reference Center for Bioethics Literature, based at Georgetown University's Kennedy Institute of Ethics. It houses a huge collection of specialist materials on biomedical and professional ethics. It is home to the Kampelman Collection of Jewish Ethics; the Rose Fitzgerald Kennedy Collection on Women, Infants and Children; the Shigeo Morioka Asian Bioethics Collection; and the Shriver Collection of Christian Ethics. This website informs users of the resources held at the Center, offers online educational and teaching materials, and provides bibliographies of print resources on a number of topics in bioethics. Scholars and students of bioethics will find this a very useful resource.
The US National Institutes of Health (NIH), in collaboration with its Bioethics Interest Group, has produced this online resource to facilitate teaching, research and scholarly activities in Bioethics. The site provides annotated links to a wide range of web links on the subject. These include those produced by the NIH themselves, and other government departments and institutes of higher education in the US. Visitors are connected to resources like case studies; reports; databases; bibliographies; directories; educational modules; virtual libraries; articles; journals; homepages of relevant institutions; and ethical codes, regulations, guidelines; policies and declarations. They are also linked to websites that hold information on upcoming events and career opportunities in the field. Bioethics topics receiving coverage are equally as diverse. They include: stem cell research; gene patenting; neuroethics; privacy; use of human tissue; pharmacogenetics; palliative care; human subjects research; and responsible conduct of research. An interesting resource for students and scholars of medical ethics.
Bioethics.com is a website which was created to help improve public discussion on bioethics by providing global information on news and issues related to the subject. Users can access various news reports going back to mid 2005 on topics such as: Eugenics; End of Life; Genetics; Euthanasia/Suicide; Organ Donation/Transplantation; Nanotechnology; Neuroethics; Public Health; Reproductive Technologies; Stem Cell Research; Transhumanism and Women's Health. The resource also makes available a bioethics poll; a list of recommended reading; a search engine; and an extensive but unannotated list of links to other bioethics websites. An interesting resource for students of medical ethics.
'bioethics.net' is the homepage for the American Journal of Bioethics. The site contains a contents page and abstracts for articles published in its latest issue, as well as commentaries on each piece. There is also information on how to subscribe to the journal in print and online.The site provides free of charge a number of short articles introducing the general reader to the field of bioethics. It also serves as a portal to a wide range of online resources on bioethics. Topics catered for include: cloning; end-of-life; genetics; stem cell research; and research ethics. This site provided a good general introduction to bioethics for beginners whilst also catering for specialists requiring the latest news, conference reports, and articles relating to the subject.
Bioethics.net is a website which offers a substantial collection of articles on issues important to this field, including: AIDS/HIV; genetically modified organisms; IVF/assisted reproduction; physician assisted suicide; and organ transplantation. The majority of the material on the site takes the form of short opinion pieces which are journalistic rather than academic in style, so this resource is perhaps most useful for those wishing to familiarise themselves with these topics in general terms, and as a spur to further debate. However, the Bioethics for Beginners section (under the Features heading) may prove useful to students new to this area, and the site also offers tables of contents for the American Journal of Bioethics, which tackles issues at greater length and in a more scholarly format. Links to the full text of the journal articles are also provided, but access requires a personal or institutional subscription. A blog written by the journal's editors is freely accessible via the main Bioethics.net site.
BioNews is a well-presented website which aims to inform readers of developments that are taking place in the fields of human genetics and assisted reproduction. Topics examined include: Human Genome Research; Embryo Screening; Sex Selection; Egg and Sperm Donation; Human Cloning; Stem Cell Research; Access to IVF; Genetic Testing; and Gene Patenting. The resource provides up-to-date news summaries of the scientific, medical and legal developments in these and related areas; commentaries on the social and ethical issues pertaining to them; and information on conferences and forthcoming events. Published by Progress Educational Trust, a UK charity (number 1011897), and sponsored by the Department of Health and AstraZeneca, Bionews is an interesting resource suitable for use by medical ethics students.
The Bioscience Bioethics Friendship Co-operative Web Portal was founded by Irina Pollard, an associate professor in the Department of Biological Science at the University of Macquarie, Australia. The initiative operates within the secular tradition and seeks to provide the public with information and educational resources on issues pertaining to bioethics. This website contains details about their philosophy and on how to contribute to the portal. The resources it makes available would be of interest and use to teachers and students of Medical Ethics. These include the full-text of a number of books (e.g. A Cross Cultural Introduction to Bioethics; Asia-Pacific Perspectives on Bioethics and Biotechnology; Asia-Pacific Perspectives on Medical Ethics); conference papers; articles; reviews; and an online bioethics dictionary. Most of these are presented in PDF, hence requiring Adobe Acrobat Reader for access.
This PDF of 'Birth of the Universal Declaration on the Human Genome and Human Rights' gives the full-text of a 1999 publication by UNESCO's Division of the Ethics of Science and Technology. It traces various stages of UNESCO's Legal Commission of International Bioethics Commission's work. The Commission endeavoured to strike the right balance between upholding human rights and guaranteeing freedom of research in genetics, before the final draft of the Declaration was released. The Declaration itself contains a preamble and 25 articles. It is provided in full in its final form, along with earlier versions. The online version of the book can be downloaded from this website without charge.
BMC Medical Ethics is an electronic only, peer-reviewed journal (ISSN: 1472-6939) which publishes work on the ethics of medical research and practice. This website allows free access to all materials published since the first volume was issued in 2000, making it a very useful and interesting resource for students of medical ethics. A search engine is available, as are lists of most viewed articles in the last 30 days and in the past year, and another on all-time most viewed articles. The site also contains their submission policy and instructions for authors. The journal is edited by Dr Melissa Norton, and published by BioMed Central Ltd, London.
This is the official website of the independent inquiry set up in June 1998 to investigate into paediatric cardiac surgery services at the Bristol Royal Infirmary between 1984 and 1995. It was led by Professor Ian Kennedy. The impetus for this inquiry was the discovery that hearts and other human material had routinely been removed from the bodies of children who died during operations there and that these were retained without the parents' knowledge. This website contains background information about the inquiry and makes available all materials published throughout the investigation. The latter include: transcripts of evidence received from parents, health care professionals and relevant parties; details of and materials from seminars it organised; and an interim report entitled 'Removal and Retention of Human Material'. The full-text of the Final Report, which is also available in Welsh, can be downloaded from this website. Medical ethicists, students and researchers would find this a useful resource.
Access to Health Records is a document issued by the British Medical Association (BMA) in December 2008, and made available as a PDF file via the Association's website. Although primarily aimed at medical practitioners in their capacity as holders of health records, this resource may also be of interest to medical ethicists and students alike. The document deals with matters such as: legal rights of access to health records and information; rights under the Data Protection Act 1998; applications for access; who can apply for access; who must give access; time limits for giving access and for making fresh requests; prescribed maximum fees chargeable for access; information which cannot be disclosed; access to records of deceased patients; and record-keeping.
Consent Tool Kit is the online version of a resource issued by the British Medical Association (BMA) to assist doctors when they are obtaining consent from their patients by providing answers to questions commonly raised by the process. The fifth edition of the Tool Kit, issued in December 2009, consists of 13 cards which cover the following areas: Guidance on Seeking Informed Consent; General Information; Information Provision; Emergency Treatment; Assessment of Competence; Adults Who Lack Capacity; Children and Young People; Determining Best Interests; Advance Decisions; Research; Teaching; Serious Communicable Diseases (including HIV/AIDS); and Useful Names and Addresses. An interesting resource for students of medical ethics. The Tool Kit is made available as a PDF file.
The Medical Ethics section of the British Medical Association (BMA) website provides access to a wide range of materials produced by the Association. These include reports, statements, guidance for medical practitioners, and information for patients. The material is organised under a number of headings (accessed via links in the left-hand sidebar), including: cardiopulmonary resuscitation (CPR); confidentiality; consent and capacity; the doctor-patient relationship; end of life issues; access to health records; health technology; and reproduction and genetics. The section's home page also offers brief reports on topical medical ethics issues, an A to Z list of BMA ethics Web resources, and a Tool Kit for doctors treating people who may lack the capacity to make decisions on their own behalf. Many of the documents accessible through this site are offered as PDFs.
This website holds a useful compilation of works published in the Canadian Medical Association Journal (CMAJ)(ISSN 1488-2329) which relate to (Medical) Ethics. The collection, which contains pieces dating from the late 1990s onwards, has over 400 articles in all. These are helpfully divided into the following sub-headings: Bioethics for Clinician Series; Competing Interests, Conflicts of Interests; Confidentiality; End-of-Life Decisions; Informed Consent; Organ Donation; and Other Ethics. The collection is up-to-date and its contents can be accessed without charge. Researchers and students of medical ethics will find this resource interesting.
This is the homepage of CedarEthics Online: The Academic Student Journal of Christian Bioethics. This online journal publishes selected papers written by students at Cedarville University on themes relating to ethical issues surrounding life, health and biotechnology. The journal is edited by Dr Dennis Sullivan, the director of the Center for Bioethics at Cedarville. This website, which also contains the journal's submission guidelines, allows access to all materials published since 2001. Works featured to date include: 'Pope Paul VI and the pill'; 'A conversation about assisted suicide'; 'A Christian perspective on stem cell research'; 'The art of dying'; 'Reflections on feminist views of abortion and motherhood'; 'Ethical choices: a case for hierarchicalism'; and 'Euthyphro's dilemma and divine command ethics'. A search engine is available on the site.
This is the homepage of the Center for Applied Ethics (CAE) which is based in Massachusetts, USA. The center researches into the clinical, psychological, organisational, cross-cultural and moral complexities connected with developments in medicine, and uses the findings to work on ways that could improve the quality of health care. This website informs visitors about their current and completed projects. Topics dealt with to date include: end-of-life care; genetics; health care ethics; genomics; pain management; the doctor-patient relationship; and organ donation. Resources like course curriculum, reports and a list of relevant print-based books and articles are also available. The center is directed by Dr Mildred Z. Solomon.
This is the homepage of the Center for Bioethics and Culture Network (CBC). Founded and directed by Jennifer Lahl, this non-profit educational organization aims to provide resources on bioethics and a forum for discussing the impacts which development in biotechnology are having on human life. The website contains information about their mission, vision, and activities (e.g. projects; conferences and seminars). There are details of new books, audios and videos; and links to news items and blogs. Medical ethics students will find the articles written by the center's staff on issues like medical care; cloning and stem cell research; reproductive technology; eugenics; the end of life; human nature; and public policy; informative and interesting. A search engine is available.
This is the home page of the Center for Bioethics and Human Dignity (CDHD) at Trinity International University. The Center, which was established in 1993, is a Christian-based organisation that conducts research on a wide range of bioethical issues. These include managed care; end-of-life treatment; genetic intervention; euthanasia and suicide; organ donation and transplantation; stem cell research; and reproductive technologies. The site contains bioethics news - including details about protests; petitions; campaigns and legal cases. It also carries a large archive of articles, bibliographies, case studies, advertisements for forthcoming conferences in the field, a regular podcast, and information about how to join the Center. There are also notices for products, such as books and software.
The website for the Center of Environmental Ethics at the University of North Texas provides information on resources throughout the world that are relevant to the study of environmental philosophy. The site introduces the discipline and its history, and provides information about the Center and the graduate courses offered there. It also offers summaries of some important books in the field, plus information about and tables of contents for the journal Environmental Ethics. The links section provides a longer list of relevant periodicals (although this does not seem to be updated particularly frequently, so there are some broken links) and a searchable bibliography. Further features include a slide show about the history of the aesthetics of nature; a photo exhibit; a series of video presentations from a 2007 conference, and an interesting "comment" section, which consists of short pieces (often polemical in tone) submitted in response to articles in Environmental Ethics.
The Center for Ethics and Policy at Carnegie Mellon University engages in research into applied ethics and political philosophy. The Center focuses on presenting ethical issues in practical settings, avoiding academic abstraction where possible. It places particular emphasis on the use of new technology in learning and teaching. The website describes the Center's objectives and the projects it has been involved with, including work in the fields of medical and scientific research ethics, corporate ethics, governance and democracy, environmental ethics and global justice. The website is also used to announce speakers and store abstracts of previous papers presented to the Center.
The Center for Health Care Ethics (CHCE) at Saint Louis University was set up in 1979. It carries out research, teaching and consultation services in a wide range of areas in health care ethics. This homepage contains detailed information about the training programs and lecture series on offer. Speakers for the latter have included well-known Medical Ethicists like James F. Childress, H. Tristram Engelhardt Jr. and Jonathan Moreno. There are also sections dedicated to news and events; research projects undertaken by its staff; newsletters and Ethics case studies. Links are provided to relevant websites. An interesting resource for students of Medical Ethics.
This is the homepage of the Center for Practical Bioethics, a non-profit organisation based in Kansas City which aims to offer support to patients and organizations in finding solutions to ethical dilemmas they face in the areas of health and health care. It focuses primarily on the following four areas: clinical and organizational ethics; aging and end-of-life care; life sciences and research ethics; and disparities in health and health care. This website contains: information about programmes and news events in these areas; and a range of materials that would be useful for ethics education and discussion of ethical issues. These include a brief discussion of bioethics itself; case studies; audio and video presentations; articles; guidelines; and forms. The site provides a search engine.
This is the homepage of the Centre for Biomedical Ethics and Law (CBMER) based at the Catholic University of Leuven, Belgium. Established in 1986, it seeks to advance teaching and research in medical ethics and law, and to provide scientific and societal services in these areas. Resources available here include: information about projects undertaken by the centre (for example, on ethical codes in nursing; the relationship between budgetary guidelines related to medical conduct and patients' rights; biobanks for medical purposes; and euthanasia); news items; papers and booklets; their activities agenda; and links to relevant websites. There are also details of books, articles and conference papers published by them; and of courses on offer - covering topics such as bioethics; health legislation; and xenotransplantation. The centre is directed by Professor Dr Herman Nys.
This is the homepage of the Centre of Medical Law and Ethics (CMLE) at King's College, London. The centre carries out research and training in the areas of medical law and ethics, global ethics and research ethics. From this website, visitors can learn about the conferences and lecture series they organise, and the programmes of study on offer. Information is given on the research projects they are involved in. The site's most valuable and interesting feature, particularly to researchers, is a bookmarking service which allows users to access the full-text of an extensive list of online articles and reports on areas focused on by the centre. Links are also provided to the centre's blog and a search engine is available.
This interesting website gives a useful account of various themes in the history of medicine. Taken from programmes previously broadcasted by Channel 4, they include the following: Nelson's Navy; Ancient Surgery; The Anatomists; Royal Deaths and Diseases; Plague on the Western Front; Mary Seacole: The Real Angel of the Crimea; Happy Birthday Thalidomide; The Great Plague; Bodies of Evidence; and The Black Death. The website would be useful for those interested in medical history. It also covers many issues that would appeal to medical ethicists and students. Unfortunately, a number of the links were no longer functioning at the time this record was reviewed.
'Chemical Ethics' is a web resource prepared by Anne Langley, a subject librarian at Duke University, to assist university lecturers and laboratory managers who wish to introduce chemical research ethics into their courses. Amongst the information and annotated links provided include those on subject headings; ethics policies applicable to chemical research; dictionaries and encyclopedias that deal specifically with scientific ethics; core texts; case studies; journals; web resources and listservs; bibliographies; and abstracts and indexes. A search engine is available.
This is the homepage of Christians in Science (CiS) (registered charity number 1121422), an international network and professional group which is made up of scientists and others interested in the relationship between science and Christianity. It is directed by Malcolm Jeeves, an Emeritus Professor of Psychology at the University of St Andrews, Scotland. This website contains their Statement of Faith and information about CiS' history, aims, activities and membership. It gives visitors access to their newsletter (PreCiS) and the homepage of their journal 'Science and Christian Belief' from where the table of contents of all issues and a number of sample articles could be viewed. There are also links to numerous online resources like articles written by CiS members on issues like Creation; Bioethics; and the Environment. Other resources include audio and video recordings of lectures and interviews; book reviews; and links to the homepages of relevant organisations and journals. A search engine is available.
This website gives users the opportunity to consult the full-text of the 2002 edition of the International Ethical Guidelines for Biomedical Research Involving Human Subjects (ISBN 9290360755). The work was prepared by the Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (WHO). Topics identified and discussed include: the ethical justification and scientific validity of biomedical research involving human subjects; ethical review; informed consent; research involving vulnerable groups like children and the mentally disabled; women as research subjects; the equitable distribution of benefits and burdens in the selection of groups of subjects in research; confidentiality; compensation for injury; and the choice of control in clinical trials. A useful resource for anyone interested in research ethics.
This website enables access to the full-text of the Code of Practice for the Surgical Management of Jehovah's Witnesses published by the Royal College of Surgeons of England in 2002. Focusing mainly on issues surrounding blood transfusion and organ transplantation, the code uses the following subject headings: ethical considerations; legal and consent issues; preoperative considerations; and surgical techniques. Samples of an Advance Medical Directive and a General Consent Form Excluding Blood Transfusion are provided in the Appendix. The document is available in PDF and requires Adobe Acrobat Reader. This should be a useful resource for those interested in medical ethics.
CODEX is an exceptionally well-organised and user-friendly website which operates as a gateway to Swedish, European and international resources on research ethics. A brief research ethics overview is offered on each of the following topics: Professional Ethics; Human Subjects Research; Animal Research; Storage and Ownership of Research Material; the Humanities and Social Sciences; Natural Sciences; Medical Research; and Genetics. The impressive range of guidelines; codes of ethics; laws and official documents on offer can be searched alphabetically or according to the above headings. This website is produced by the Swedish Research Council in collaboration with the Centre for Research Ethics and Bioethics at Uppsala University, Sweden.
This website contains the full text of the latest Code of Ethics and Guidelines for Professional Conduct issued by the College of Optometrists (Charity Number 1060431) which is the professional, scientific and examining body for optometry in the UK. Guidance is provided on a wide range of issues including the following: professional integrity; the conduct of research; the supervision of trainees and colleagues; the routine eye examination; the examination of patients with diabetes mellitus and those at risk from primary open angle glaucoma; frequency of eye examinations; contact lens practice; patient records; and the sale and supply of spectacles. Previous versions of the Code can also be viewed and downloaded from the site. An interesting resource for students of health care ethics.
This website makes available the transcript of a keynote speech given at a doctoral colloquium at North Carolina State University by Professor James R. Wilson. It discusses scientific misconduct, and the ethical and methodological principles that genuine scientists must hold on to. The relevance is particularly to computer simulation research, but there are also some general insights into the matter of falsification, and the peer review system as currently practised in scientific journal publication. This article could be of interest to advanced students and researchers exploring questions of scientific ethics and honesty, falsification, and standards in methodology. References are provided.
This is the online version of the NHS Code of Practice on Confidentiality published by the Department of Health in November 2003. The document explains, among other things, what is meant by 'confidentiality' and the circumstances in which patient information may be used or disclosed. The obligations of individuals working in the National Health Service (NHS) are outlined and guidelines on required practice are provided. It dealt also with the Data Protection Act and the Human Rights Act, and discusses issues like patients' consent to the use of their health records and the limits of confidentiality. Although aimed primarily at NHS staff, the resource would be of special interest to medical ethicists and students.
This is the online version of the 'Confidentiality and Medical Genetics' report (ISBN: 0953359604) which was commissioned and published by the UK Genetic Alliance (formerly the Genetic Interest Group) in 1998. Its aims are three-fold: to describe current practice in medical genetics in Britain with particular reference to the issue of the privacy and confidentiality of information; to highlight the ethical issues which shared use of individual genetic information within families give rise to; and to propose a framework that would guide health care professionals working in this area. The report is 23-pages long and is divided into the following 8 sections: Introduction; Regulatory and Legal Issues; Current Practice; Confidentiality; The Right Not To Know; Professionals and Families Working Together; The Consent Form; and Summary and Recommendations. This would be a useful resource for those studying genetic ethics.
This Web page provides access to the online version of the booklet entitled 'Consent: Patients and Doctors Making Decisions Together', published by the General Medical Council (GMC) in June 2008. This version replaces the earlier work entitled 'Seeking Patients' Consent: The Ethical Considerations', published in November 1998. It contains a set of principles on good practice which registered medical practitioners are expected to observe when obtaining patients' consent to examination/investigation, treatment, teaching, and research. Guidance are provided on issues like: sharing information and discussing treatment options; how to deal with questions; expressions of consent; the scope of treatment in emergencies; how to make decisions when a patient lacks capacity; how to involve children and young people in medical decision-making; how to ensure voluntary decision-making; and how to present information to patients. Viewers can also find a list of relevant cases and legislation in the Annex. The booklet can be browsed online, or downloaded as a PDF file. An interesting resource for students of medical ethics.
This website allows access to the full-text of 'Consent and Confidentiality in Genetic Practice: Guidance on Genetic Testing and Sharing Genetic Information', a report of the Joint Committee on Medical Genetics. Published in Aprill 2006, the work was jointly commissioned by the Royal College of Physicians; the Royal College of Pathologists; and the British Society for Human Genetics (BSHG). 30 pages in length, the report is presented under the following chapter headings: Consent in Medical Genetic Practice: General Aspects; Giving and Sharing Genetic Information; Genetic Investigations on Stored Samples or Archival Pathological Material; The Human Tissue Act 2004, Consent and DNA Analysis; The Data Protection Act 1998 and the Processing of Medical Genetic Information. The resource would be of interest to those studying Medical Ethics.
The Consent Guidance and Forms Web page offers a number of documents published by the NHS National Patient Safety Agency. These aim to assist researchers and reviewers participating in research involving human subjects. The resources include information on informed consent; a lengthy document giving guidance on the preparation of information sheets and consent forms; and a number of items relating to adults unable to consent for themselves. Topics covered by the site include: consent; information sources; randomisation; risks; placebos; confidentiality and the use of personal data; data storage; samples; and recruitment to trials. An interesting resource for those studying medical and research ethics.
This is the home page of the Danish Centre for Bioethics and Risk Assessment (CeBRA). Established in 2000, the Centre is jointly owned by the Faculty of Agricultural Sciences of the University of Aarhus; the National Food Institute at the Technical University of Denmark; the Faculty of Life Sciences at the University of Copenhagen; and the University of Copenhagen. This website contains information about the Centre's current projects and its list of participants. Reports and copies of the Centre's publications, on issues like animal cloning; ethics and nanotechnology; and genetically modified food; are also available. Links are provided to the home pages of relevant organisations. The site is in Danish. An interesting resource for students of medical ethics, particularly those undertaking comparative work.
This is the official website of the council which advises the Danish government and public authorities on ethical issues associated with biotechnology. Visitors can find news reports, press releases, information about conferences and annual reports. They may also access most of the materials published by the council (e.g. debate outlines, conference reports, recommendations) on topics as varied as euthanasia; microinsemionation and preimplantation genetic diagnosis; assisted reproduction; fetal diagnosis; the patenting of human genes; cloning; anonymity and selection in the context of sperm donation; and genetic engineering. Information on how to order the print version of these and those that were not available online can be found here. Links are provided to the home pages of relevant organisations.
This is the homepage of the Dartmouth College Ethics Institute. Led by Professor Ronald M. Green, the institute is actively engaged in teaching and research activities in applied and professional ethics. Faculty's interests range from medical, business, legal and engineering ethics, to teaching and research ethics. This website provides an events calendar; and information about: seminars; competitions and campus visits; visiting scholars programme and other fellowships on offer; educational programmes and research opportunities available. There is also an annotated link to relevant online resources which would be particularly interesting to students of Philosophy and Applied Ethics.
This website presents a copy of the Declaration of Helsinki (DoH). First adopted by the 18th World Medical Association (WMA) General Assembly in Helsinki, Finland in June 1964, the document contains a set of ethical principles that must be adhered to by members of the medical profession when conducting research and experimentation on human subjects. The declaration has since been amended a number of times and this web page provides a copy of the latest version, both in HTML and PDF versions. The site also lists a number of reference sources for further research on the historical and contemporary significance of the declaration - a number of which contain links to the electronic copies. A useful resource for students of medical ethics.
Dignity in Dying (formerly known as the Voluntary Euthanasia Society) is a UK-based organization which works to promote patient choice at the end of life. It carries out research, and campaigns for the legalization of physician-assisted suicide. This website contains information on the works done on these fronts, as well as information on advance decisions; the organization's press releases; and recent news articles on end-of-life issues including high profile cases like those of Debbie Purdy's, Diane Pretty's and Dr Anne Turner's. Also provided are: a list of FAQs; and general discussion on the law relating to assisted suicide in the UK and the Director of Public Prosecution (DPP)'s Interim Policy on Prosecuting Assisted Suicide issued in September 2009.
'Directory to the Subject Bibliographies in Environmental Ethics' is a website which holds a cumulative list of published bibliographies in the area of environmental ethics. The list was compiled by Timothy C. Weiskel for the Center for the Study of Values in Public Life at the Harvard Divinity School. Initially developed as teaching and research aids for courses offered at the School, they are now made available on this website for general public use. The bibliographies are divided into three sections: the Class Bibliography Series (produced for specific courses at Harvard); the Subject Bibliography Series (consisting of bibliographies covering quite specific sub-categories within the topic); and the Occasional Bibliography Series. Each bibliography provides full references. Visitors should note, however, that the site does not seem to have been updated since 1998 and a small number of links are no longer functioning.
Diseases and Disorders: Links Pertaining to Ethics is a collection of lightly annotated links to important websites on biomedical ethics. These are organised into seven categories: Bioethical Issues; Bioethics; Institutional Ethics; Professional Ethics; Humanism; Morals; and Professional Misconduct. Between them, over 200 entries from around the world are recorded. They cover a diverse range of issues such as the ethical use of animals in biomedical research; the administration of lethal injection to prisoners on death penalty; war crimes; abortion; organ transplantation and donation; assisted suicide; cloning; human rights; confidentiality and privacy issues associated with medical records; medical malpractice; and the use of human subjects in research and experimentation. The sources linked to range from journalistic pieces to material produced by academic institutions and articles in medical journals (some publications may require subscription to access the full text). The site would be of interest to students on medical ethics courses.
This is an online exhibition of the Doctors Trial which took place in Nuremberg between the 9th of December, 1946 to the 19th of July, 1947. The resource is hosted by the United States Holocaust Memorial Museum to commemorate the trial's 50th anniversary. There, 23 German doctors and scientists stood accused of war crimes and crimes against humanity for the roles they played during the Second World War. This website makes available a small number of photographs and excerpts from the official trial record which includes transcripts of the opening statement; indictment; testimony entered as evidence; and sentences. It also gives access to a copy of the Nuremberg Code. A useful resource for anyone interested in medical and research ethics.
The German Reference Centre for Ethics in the Life Sciences (DRZE) was set up in January 1999 with the primary aim of facilitating access to information on German and international bioethics literature. This website is home to two important online databases. BELIT offers access to an extensive bibliographic directory of bioethics literature. It is developed by DRZE and operated jointly with the Information and Documentation Centre for Ethics in Medicine (IDEM, Goettingen), the Interfaculty Centre for Ethics in the Sciences and Humanities (IZEW, Tubingen), the Kennedy Institute of Ethics (KIE, Washington) and the Centre de documentation en ethique (CDE, Paris). BEKIS enables access to information about German and international institutions and projects in bioethics research. This website also provides links to other Internet resources dealing with ethics in the life sciences.
This is the homepage of the Institute on Care at the End of Life (ICEOL) at Duke University. The institute was established in 2000 to improve the care of patients who are dying by advancing and applying knowledge about caring for those at the end of life with particular attention paid to spiritual support and care. This website contains several resources that would be of interest to students of medical ethics in general and those researching on end of life issues in particular. These include access to the institute's newsletters; e-books; commentaries (presented in PDF); annual reports; annotated links to the homepages of relevant organizations; and information about news, events and the institute's programmes. A search engine is available. The centre is directed by Dr Richard Payne.
The Earth Charter Initiative website describes a worldwide project devoted to promoting and implementing 'fundamental principles for building a just, sustainable and peaceful global society in the 21st century'. Its contributors are international experts, local community groups, non-governmental organisations, professional societies, and youth groups. In addition to material for a general audience, the website provides some excellent resources for researchers: the most useful area for scholars is the Resources section, which offers a substantial virtual library. This includes the Earth Charter itself, documentation on its creation, transcripts of speeches, essays, articles, and conference papers, as well as teaching materials for all levels of education and information on groups and projects arising from the Earth Charter's programmes. A useful site for those with an interest in environmental and social ethics.
Edge is a web magazine and email list emanating from the Reality Club, which is a group of self-styled intellectuals concerned with topical issues of scientific, philosophical, and cultural resonance. In particular, the magazine recognises scientists as a part of the intellectual community. There is hence a heavy bias in the magazine towards the sciences, especially the public presentation of advancements and controversies in physics, evolutionary biology, and neurophysiology. In 2010, the focus is on how the Internet is changing the way people think.
The site is at first glance puzzling to navigate, as the purpose of separate sections is not transparent, and parts of the site are duplicated in different sections. The current edition of the magazine can be read from the home page, and consists primarily of recent articles drawn from other sources, while past feature articles can be found in the "Features" section, and past editions in their entirety can be found indexed and archived in the "Edge Editions" section. Instructions for subscribing and receiving Edge by email are given. The "Reality Club" section of the site consists in transcripts of talks and responses from the club's members. The "Third Culture" section presents a history of the thinking behind Edge and the Reality Club, and a link to biographies of some its important figures and contributors, whereas the "Digerati" section offers hagiographies of a group of people cast as the elite of the cyberspace communications revolution. A search facility for the whole site is provided.
There is more than a hint of self-congratulation to be found on this site, with respect to its apparent cutting-edge status, nevertheless the fact remains that important thinkers contribute to and are discussed here, and it would be of interest to anyone seeking to monitor the current climate of science and humanities journalism.
The enviroethics discussion forum for environmental ethics was set up by the JISCmail, the National Academic Mailing List Service in 1994. The site houses an archive of all information and messages sent to the list from 1998 onwards. Posts include conference announcements and calls for papers, short articles, and relevant news items. Searches can be conducted using the user-friendly facility provided. The archives are publicly available, but posting to the list and accessing some other areas of the site requires registration. Information is provided about how to join, leave, post to, and manage the list.
This is the homepage of the Program on Ethical Issues in Global Health Research (EIGHR) at the Harvard School of Public Health. Directed by Dr Richard A. Cash, the program develops and implements a number of ethics-related educational initiatives. This website informs visitors of the courses on offer, and provides a number of resources that would be useful to those teaching and studying the ethics of international health research. These include discussion questions, annotated reading lists, links to relevant websites and case studies on the following topics: Principles of Research Ethics; Informed Consent; Responsibility to the Study Community; Mechanisms of Approval; and the Role of Funders. The site also makes available the archives of their internet discussion list and a search engine.
Hosted by the US National Library of Medicine, this bibliography contains over four thousand references to journal articles and books on topics relevant to the involvement and protection of human participants in biomedical research. The resource starts by recounting the tragic events surrounding the Tuskegee Syphilis Study (1932-1972) and went on to highlight how the compilation of this bibliography represents a serious effort to ensure that such a sad episode in the history of medical research is not replicated in the future. The work, it was hoped, could facilitate the education of researchers on the ethics of research involving human subjects. The entries are organised under the following headings: Overview of the ethics of research involving human participants; Historical perspectives on research involving human participants; Informed consent; Community consent; Privacy and confidentiality; Clinical trials; Special or vulnerable populations (women, minorities and cross-cultural issues; children and adolescents; the cognitively impaired; prisoners; and military personnel); Teaching and research using newly deceased patients; Genetics research; Research on gametes, embryos, and foetuses; Cloning; Research involving human biological materials; Xenotransplantation; AIDS/HIV research; Cancer research; Emergency, Acute and critical care research; Drug and device development; and Institutional review boards and ethics committees. The bibliography was compiled in 1999 and is now archived, and so does not list newer works on this subject, but still has the potential to be a valuable resource for those working in this area.
'Ethical, Legal, Social Implications and Issues of Human Genome Project (ELSI)' is an online resource which would be of practical use to anyone interested in human genetics and the human genome project. The main page consists of a partly annotated gateway to websites on subjects such as: professional policy papers; ethical, legal, public policy; testing/insurance/privacy/nondiscrimination; courses; and ethics centres. Towards the bottom of the page are links to three interlinked home pages. The first is targeted primarily at individuals and families with genetic conditions or birth defects. These pages contain, among other things, an A-Z directory of genetic and rare conditions, as well as links to organisations and support groups working with numerous conditions. The second contains clinical, research and educational resources intended for genetic counselors, clinical geneticists and medical geneticists. These include: links to a network of Genetic Professional Societies and laboratories around the world; online databases and Internet resources; and information on courses and conferences. The third, which would be of use to teachers and students, contains links to: educational sites on the Human Genome Project; online resources like books, fact sheets, videotapes and curricula; and computer programs. This website is sponsored by the University of Kansas Medical Center.
The ETHICOMP Journal (ISSN: 1743-3010) publishes papers from the ETHICOMP international conference series on computer ethics and social responsibility. This website offers tables of contents and abstracts of all material published between 2004-2008. Access to the full-text of articles can be obtained by free registration. The following are amongst the titles published: 'Computer ethics activities for use in introductory computer science courses'; 'Does the accountancy profession provide an ethical role model for the computing profession?'; 'The global culture of digital technology and its ethics'; 'Computers as surrogate agents'; 'The need for an applied computer ethics network'; 'Ethical issues for the virtual university'; 'Ethical implications of computer technology for librarians'; and 'Teaching ethics embedded in technical subjects'. The journal is edited by Professor Simon Rogerson and Dr Ben Fairweather of De Montfort University, UK.
Ethics and Genetics is an online exhibition produced by the DeWitt Stetten Jr Museum of Medical Research. Well-presented and engaging, the materials are organized under the following headings: The Genetic Basics - What are Genes and What Do They Do?; Diagnosing and Treating Genetic Diseases; Genes and Drugs, Vaccines, and Enzyme Replacement Therapy; Gene Therapy; The Human Genome Project; Ethics and Genetics; Guiding the Revolution; and Just for Kids! A Cartoon Guide to Genetics. A glossary of terms and links to relevant websites are also provided. A useful resource for those seeking an introduction to genetic ethics.
'Ethics and Health' is a website which holds a fairly extensive amount of information on a range of topics in bioethics. Produced by the World Health Organization (WHO), resources available include: information on WHO's regional activities and the global summits of national bioethics advisory bodies. There is additionally a section which discusses key topics in bioethics (e.g. the HIV/AIDS epidemic; cloning; long-term care; human organ and tissue transplantation; and pharmacogenetics). Recent WHO publications on issues related to bioethics can be downloaded from the site without charge. Information about internships is also provided. A search engine is available.
'Ethics in Computing' is a website maintained by Dr Edward F. Gehringer, an associate professor in Electrical and Computer Engineering (ECE) and Computer Science at North Carolina State University (NCSU). Presented are links to online materials (mainly articles) on the following topics: computer abuse (e.g. hacking; worms; and viruses); commerce (e.g. cybersquatting; fraud; spam; and auctions); intellectual property (e.g. patent and copyright law; MP3s; licensing; and interoperability); privacy (e.g. database privacy and encryption); risks (e.g. artificial intelligence; network security; software reliability; and virtual reality); social justice issues (e.g. equity of access; workplace; and immigration); and speech issues (e.g. anonymity; free speech; and chain letters). Although a small number of links are not working, this remains a valuable resource as it covers a host of topics not frequently covered by mainstream ethics pages. The site is straightforwardly presented and contains a search engine.
'Ethics in Food and Agriculture' is an interesting resource produced by the Food and Agriculture Organization (FAO) of the United Nations. Accessible in English, French, Spanish, Arabic, and Chinese, the website highlights the threat posed to food security and sustainable rural development by technological and economic developments. Contents include the reports and biographies of its Panel of Eminent Experts on Ethics in Food and Agriculture. Materials from its publication series, the FAO Ethics Series, can be viewed and downloaded in full (topics discussed include: genetically modified organisms; food safety; and the ethics of sustainable agricultural intensification). Further supplied are information about current news and events, and press releases.
'Ethics in Medicine' is a website maintained by the University of Washington School of Medicine. It is dedicated to the provision of information on a wide range of topics in bioethics, the branch of philosophy that investigates ethical issues in medicine. The main section of the site contains an index of topics, which users can click on to gain access to a general discussion and overview of the selected issues (e.g. advance directives; confidentiality; do-no-resuscitate orders; informed consent; resource allocation; and termination of life-sustaining treatment). Each topic is accompanied by case studies, further readings, and other recommended resources on the web. In addition, there is a 'Bioethics Tools' section which introduces methodologies for decision making in clinical ethics, and a 'Bioethics by Clerkship' feature, which offers examples and case studies of ethical problems that attach to differing clinical roles. Finally, there is a list of links to other bioethics-related web resources and online professional societies and organisations.
This is the online version of a booklet entitled 'Ethics OSCE: Standardized Patient Scenarios for Teaching and Evaluating Bioethics'. The work, which was written by Peter Singer and Anja Rob of the University of Toronto, should be of interest to teachers and students of medical ethics. Published in December 1994, it contains 14 ethics OCSE (Objective Structured Clinical Examination) cases designed to assist with the teaching and evaluation of bioethics in medical schools. Of the 14 patient scenarios, 7 are on Decisions to Forego Treatment; 2 are on Confidentiality; 3 on Truth Telling; and 2 on Women's Health. The booklet was published by EFPO (Educating Future Physicians for Ontario) and the website is maintained by the University of Buffalo Center for Clinical Ethics and Humanities in Health Care.
The Ethics Research Information Catalogue (E.R.I.C) in an online database created for the use of researchers and members of ethics committees. This resource provides information on a fairly extensive collection of materials on the ethics of medical research involving human participants. There are references to: European Union and international directives; national legislation; case law; books; works from research and ethics bodies; journal articles; and the experience of researchers and ethicists in the field. Searches can be conducted according to keywords or authors. Links are also provided to the home pages of governmental bodies and research organisations. Regrettably, the Word documents listed on the site cannot be accessed at the time this record was reviewed and visitors should note that the site does not seem to have been updated since 2008.
'Ethics.be' is a website which aims to serve as Belgian's main reference point on news and research relating to ethics. Accessible in English and Dutch, the site provides access to resources like news; opinion statements (on issues like euthanasia, death, cloning, abortion and human experimentation); past and forthcoming conferences, lectures and symposiums; newsletters; and a discussion forum. It also contains information on recent publications and provides links to the homepages of its partner institutions. A search engine is available.
The Ethox Centre was set up in 1998 within Oxford University's Department of Public Health and Primary Health Care. It conducts research and teaching on ethical issues associated with medicine, and provides ethics support to health services. This home page contains information about courses offered by the Centre, and the workshops and conferences it organises. Teaching materials on a number of key topics in bioethics (e.g. the Human Tissue Act; consent; confidentiality; the end of life; genetics; research with humans; and organ transplantation) can be viewed and downloaded from here without charge. It further provides useful sections that focus on Clinical Ethics Support and the projects undertaken by the Centre on areas like Genetics; Clinical Ethics; Mental Health and Neuroscience; and Global Health and Epidemiology. The centre is directed by Professor Michael Parker.
'Eureth.net' is the Internet portal of a project dedicated to European bioethics. This Web page serves as an entry point to EUROETHICS (a bibliographic and literature database concerned with medical ethics and biomedical ethics) and ENDEBIT (a literature database on ethics in non-medical biotechnology). The site also contains a section which deals with the scientific, legal and ethical aspects of several bioethics topics like genetically modified foods and predictive genetic diagnosis. Other services available include the provision of a bioethics events calendar and annotated links to relevant websites. This resource was funded by the European Commission. Users should note that the project concluded in 2005. The site may not therefore always include the most up to date information. Likewise, a number of the hyperlinks do not seem to be in operation at the time this record was reviewed.
This is the official website of European Bioethical Research, an international non-profit organisation which aims to promote bioethics research and discussion amongst academics. It is based in Edinburgh, Scotland. This website allows access to: the home page of the organisation's journal 'Human Reproduction and Genetic Ethics'; a few reports; and 'BioNews' - a free weekly news digest published by ProgressEducationalTrust (PET). Links are also provided to the home pages of relevant UK-based and international organisations.
The European Group on Ethics in Science and New Technologies (EGE) advises the European Commission on ethical aspects of science and new technologies to help them prepare and implement Community legislation or policies. It was set up in 1997 and is made up of individuals from various fields of expertise. This website contains the Group's remit, operating rules and composition. It also allows full text access to all 'Opinions' the group has delivered since 1998 on a diverse range of issues (e.g. the patenting of inventions involving human stem cells; clinical research in developing countries; genetic testing in the workplace; and umbilical cord blood banking). Likewise, full text access is given to all its official publications. Information is also given of activities undertaken by the group since 2001. The site is available in English and French.
This website on Euthanasia is maintained by the Dutch Ministry of Health, Welfare and Sport. The resource gives visitors a useful overview of the law introduced in 2002 which makes it no longer punishable for doctors in The Netherlands to terminate their patients' lives at the latter's request, provided certain guidelines are observed. A brochure containing information on the Act can be downloaded from the site, as can a copy of the report which evaluates the legislation. Also available are discussions on: the significance of informing patients about end of life issues; palliative care; and the termination of life of neonates. An interesting resource for students of medical ethics.
This is the home page of the Forum on Religion and Ecology at Yale University. Directed jointly by Professors Mary Evelyn Tucker and John Grim, the forum is an interreligious, interdisciplinary and multicultural project on the environment. This website contains information about the project itself and details about publications, news and events on religion and ecology. It includes materials that explore the interaction between humans and the environment from the perspective of Buddhism, Christianity, Confucianism, Daoism, Hinduism, indigenous traditions, Islam, Jainism, Judaism, and Shinto. It also includes discussions of science, ethics, public policy, gender, and economics. And in line with its aim to establish religion and ecology as an academic discipline, resources like course syllabi and speakers list are also provided. Visitors can further access without charge resources like essays; the forum newsletter; official statements on religion and ecology; and links to the home pages of relevant journals, magazines and organisations.
'The Future of Humanity Institute' (FHI) describes itself as... "a unique multidisciplinary research institute at the University of Oxford" operating as part of the Oxford Faculty of Philosophy. The Institute seeks to engage in pioneering research in the ethics of areas such as: 'Human enhancement'; 'Global catastrophic risks'; 'Rationality and wisdom' in decision-making; and 'Future technologies'. The FHI website offers a full description of FHI staff, and there are also progress reports to download in PDF format. Video is available for some of the guest lectures at the FHI. The pages that detail each of the main research strands also offer full-text PDF papers for download, and links to FHI weblogs.
This website provides free access to the full-text of 'The Genetic Revolution' (ISBN: 0860658716) - a book which examines the impact of genetic engineering on society. It was written by Dr Patrick Dixon, a physician by training who is also the Chairman of Global Change Ltd. The book is organised into the following nine chapter headings: The End of the Line?; Playing God - Genetic Engineering; Cloning Copies of Yourself; Designer Life - Designer People; Strange Foods in a Strange World; New Gene Medicines for New People; Takes a Virus to Catch a Virus - Mutant Bugs?; Could New Genes Destroy Us? and A Practical Way Forward. The book was published in 1995 by Kingsway. This resource also contains web and RealVideo updates and comments on the issues discussed in the book. An interesting resource for students of medical ethics.
The Global Forum on Bioethics in Research (GFBR) was brought into being by a number of organisations (e.g. UNESCO, WHO, the Medical Research Council (UK), the National Institutes of Health (US), the Wellcome Trust and the Pan American Health Organization) to encourage discussion about ethical issues arising from research involving human participants particularly in developing countries. The Forum meets annually and this website makes available the programmes and reports of each meeting since the first one was held in June 1999. Other resources include a list of FAQs; newsletters; the powerpoint slides of presentations; case studies; information about current news and events related to research ethics; and a very well-presented list of annotated links to the homepages of relevant organizations from around the world.
'GM Science Review' is a website which provides detailed information on the progress and outcome of the study led by Sir David King into the scientific aspect of genetic modification (GM). The work by the GM Science Review Panel is one strand of the UK Government's initiative to promote national dialogue on GM issues. This website contains downloadable copies of the panel's report entitled "An Open Review of the Science Relevant to GM Crops and Food Based on Interests and Concerns of the Public". The first report was published on the 21st of July 2003 and a supplementary second report was issued on the 22nd of January 2004. The site also provides background information about the panel and their work; details of panel and open meetings; comments on the first report; and links to relevant websites. This resource should be of interest to those researching into the ethical and environmental effects of genetic modification.
This Guardian Special Report website is dedicated to the proceedings of the World Summit on sustainable development which took place from 26 August to 4 September 2002 in Johannesburg, South Africa. It offers a collection of items related to the summit which were published in The Guardian newspaper both during and shortly before and after the summit itself. Audio reports are also available. This is a useful resource for those seeking a lively introduction to the summit and the issues it touched on, which included: genetically modified (GM) foods; AIDS; fish stocks; poverty; starvation; waste management; and freshwater ecosystems.
This is the online version of 'Guidance on Ethics and Equitable Access to HIV Treatment and Care' (ISBN 9241592583), a document produced jointly by the World Health Organization (WHO) and UNAIDS (the Joint United Nations Programme on HIV/AIDS). The work provides guidelines and recommendations to government officials and related parties in an effort to ensure that HIV-related treatment and care reach more of those who can benefit from them and that the manner in which these are made available is fair and morally defensible. This document focuses particularly on the accessibility of Antiretroviral Therapy (ART). Although the work is targeted primarily at policy-makers, it could also be useful to students of medical ethics, or indeed to anyone concerned about the issues it discussed. The document can be downloaded without charge.
'A Guide to Understanding Informed Consent' is a website maintained by the National Cancer Institute, USA. The resource seeks to acquaint the institute's clinical research participants with the concept of informed consent i.e. the idea that they should be sufficiently informed about the trial they plan to participate in before giving their consent. Areas touched on include: the history of informed consent itself and how it fits into a larger system that protects the interest and well-being of those taking part in clinical trials; what to expect in the process; questions to ask the research team; and a list of resources that could be consulted by participants if they require further information on the matter (e.g. government policy; guidebooks; brochures; and official reports). This would be an interesting resource for those studying Medical and Research Ethics.
This website, which is maintained by the Department of Health in South Africa, provides a set of guidelines that should be followed when conducting clinical trials involving human participants in South Africa. Issues touched on include: study designs; investigator's competence; safety monitoring; ethical review; risk-benefit analysis; multi-centre studies; transparency; privacy; informed consent; the roles and responsibilities of the various parties involved in clinical trials (e.g. the regulatory authority, the Department of Health, the National Health Research Ethics Council and ethics committees); and the steps to be followed when obtaining clinical trial approval. An interesting resource for students of medical and research ethics, particularly those undertaking comparative work.
This is the online version of the guidelines written and approved by the British Society of Gastroenterology on the operation of the doctrine of informed consent in relation to endoscopic procedures. Produced under the chairmanship of Professor Duncan Bell, a Consultant Gastroenterologist at Sunderland Royal Hospital, the document gives a useful overview of the doctrine as well as how it could be of relevance to different endoscopic procedures. Included in the appendix are: an example of an endoscopy consent form; and a list of suggested style and items that should be included in information sheets provided to patients. This should therefore be an interesting resource for those studying medical ethics.
This website contains the full-text of the 25 pages long brochure published in August 2004 by the US National Institutes of Health (NIH) entitled 'Guidelines for the conduct of research involving human subjects at the National Institutes of Health'. Below are the subject headings for the materials discussed: The Historical, Ethical and Legal Foundations for the NIH's Policies and Procedures; The NIH's Human Research Protection Program; Responsibilities of Investigators; Responsibilities of the NIH's Institutional Review Boards; Collaborative Research Activities; and The Office of Human Subjects Research. An interesting resource for students of medical and research ethics.
This is the homepage of the Harvard University Program in Ethics and Health (PEH). Directed by Professor Dan W. Brock, this university-wide and inter-disciplinary Bioethics programme focuses predominantly on global and population health. This website contains information about the doctorate and post-doctorate fellowships they offer as well as the works carried out by their working groups on Research Ethics; Global Ageing; Genetics; Professionalism; and Prioritization of Healthcare Resources. It likewise makes available a calendar of forthcoming and past events; the video recording of a panel discussion on stem cell research; annotated photographs; and links to the homepages of relevant organizations and journals.
This is the homepage of The Hastings Center - an independent bioethics research institute established in 1969. This website informs visitors of the research projects it carries out in areas such as Genetics and Biotechnology; Health Care and Health Policy; Ethics, Science and the Environment; and Ethics and Scientific Research. Access is provided to the homepages of the Center's journals namely the Hastings Center Report; Bioethics Matters; and IRB: Ethics and Human Research. Likewise allowed is access to resources like articles; essays; reports; and books. Information about internships; fellowships; and employment opportunities are also helpfully provided. A search engine is available.
This is the official website of the council responsible for advising the Dutch government on public health matters. It informs visitors about recent news and the advisory reports they publish in the following six main areas of activity: Optimum Healthcare; Prevention; Healthy Nutrition; Environmental Health; Healthy Working Conditions; and Innovation and the Knowledge of Infrastructure. Summaries of the reports can be downloaded from here without charge. Visitors can also subscribe to their newsletters. The site is navigable in Dutch and English. A search engine is available.
'HealthCare Ethics' constitutes a part of the 'Applied Ethics Resources on WWW' intiative, a project sponsored by the W. Maurice Young Centre for Applied Ethics. This resource presents a collection of very lightly-annotated links to a range of websites useful for the study of medical ethics. These include the home pages of institutes and organisations, and websites dealing with core issues in the area such as: cloning; DNA banking; care of the dying; codes of ethics; genetics; AIDS/HIV; and research ethics. A list of online and print publications is also available. The site is administered by Dr Chris MacDonald, an associate professor in the Philosophy Department at Saint Mary's University, Canada.
This website contains the online version of 'Human Cloning: Ethical Issues', a booklet published by the United Nations Educational, Scientific and Cultural Organization (UNESCO) in 2005. The work starts by giving a brief historical review of cloning - 'the laboratory-aided replication of a strand of DNA that is used to produce an identical being'. It then describes the developments that have taken place with animals (photographs supplied) before proceeding to address the ethical issues surrounding human cloning. It explores also whether adult stem cells can replace embryonic stem cells and if research cloning is different from reproductive cloning. Another theme which was pursued was how cloning techniques could be regulated at an international level. Suggestions are made of further readings and related resources. The document, which is presented in PDF, should be a useful and interesting resource for those studying or researching on the ethics of science and medicine.
This is the official website of the Human Fertilisation and Embryology Authority (HFEA) - the body which regulates and monitors activities relating to: reproductive technologies like in vitro fertilisation (IVF) and donor insemination; the storage of eggs, sperms or embryos; and human embryo research in the UK. Available are information and resources: connected with the Authority (e.g. annual reports, policy statement and organisational structure); for patients (e.g. the Authority's Guide to Infertility and sources of funding for fertility treatments); and for donors (e.g. a list of FAQs and documents on issues like consent to and the use and storage of gametes and embryos). Also provided are press releases and downloadable copies of documents published by the Authority on topics like Code of Practice, Annual Conference Report, Corporate Policies and Plans, Freedom of Information Guidance and Clinical Inspection Reports. This website is useful for those researching on ethics at the beginning of life.
This is the homepage of the Human Genetics Commission (HGC), a body which advises the UK government on developments in human genetics, particularly on the social, ethical and legal issues involved. This website, apart from making available information on the origins and responsibilities of the Commission, contains extensive and useful information on the works that have been and will be undertaken. Its Working Groups have thus far looked at issues like genetics and reproductive decision-making; the case for and against genetically profiling babies at birth; genetic testing services supplied direct to the public; and the storage, protection and use of genetic information. And issues examined by its Monitoring Groups include: identity testing; genetic discrimination; intellectual property; and research databases. A section headed 'Document library' enables access to downloadable official publications; newletters; meeting papers; reports; and other documents. Users are also advised of the latest news and forthcoming events, and are provided with links to relevant websites. A search engine is available.
This highly informative resource houses a number of separate sub-sites concerning the US Human Genome Project (HGP) - a thirteen year initiative begun in 1990 to discover and characterise all human genetic material and make them amenable for further study. The first sub-site provides information about the HGP. This is followed by a sub-site which explores the social, legal and ethical challenges brought forth by the availability and use of genetic information. A further sub-site focuses on genomics and medicine; whilst another which is directed at scientists, provides links to materials on sequencing, mapping, instrumentation and informatics. Students and teachers are catered for in a section on education, providing resources such as videos; graphics; lesson plans; and posters. In addition to these, there is an extensive set of publications by the HGP, some of which are in PDF. Visitors can also find a list of FAQs and links to other websites of interest.
This web page contains the full-text of a lecture entitled 'Human Radiation Experiments: Reflection on the Ethics of Biomedical Research' delivered by Ruth M. Faden, the Philip Franklin Wagley Professor of Biomedical Ethics at Johns Hopkins University. The talk, given in Italy in 1998, focuses on the background; objectives; findings and recommendations of the Advisory Committee on Human Radiation Experiment. This independent national commission which she chaired, was established by Bill Clinton in 1994. The resource is accessible in English and Italian. It would be of interest to those studying medical and research ethics.
This is the homepage of the Human Tissue Authority (HTA), a body established by the Human Tissue Act 2004. It regulates the removal, storage, use and disposal of human bodies, organs and tissues from living and deceased donors for research, transplantation, education and training purposes. This website contains information about the activities undertaken and events organised by the HTA. It also makes available numerous resources that would be of use to students of medical ethics. These include: the HTA's Code of Practice; FAQs; downloadable publications (e.g. annual reports; leaflets; e-newsletters; meeting papers); model consent forms; a glossary of terms; media releases; and news stories. The site, which is accessible in English and Welsh. is sponsored by the Department of Health and contains a search engine.
Humanimalia is a full-text peer-reviewed ejournal, freely available online and published from DePauw University. Humanimalia aims to publish three times per year, and the first issue was published in August 2009. This online journal publishes HTML papers and reviews on the topic of human-animal encounters, covering fields such as contemporary philosophy, cultural studies, sci-art, and storytelling. Example articles available in the first issue include: 'Animal Farm's Lessons for Literary (and) Animal Studies'; 'Naming names - or, whatís in it for the animals?'; and 'At the Heart of the Home: An Animal Reading of Mikhail Bulgakovís The Heart of a Dog', with reviews of such books as 'What Animals Mean in the Fiction of Modernity' (2008). The website also contains a 'Humanimalifesto', and a Calls for Papers page where one can find the details of the Editorial Board. This unique journal may be of interest to scholars working in a variety of fields.
HYLE is published by HYLE Publications, Karlsruhe, in cooperation with the University of Karlsruhe, Institute of Philosophy. It is a refereed international journal for the philosophy of chemistry, which covers epistemological, methodological, foundational, and ontological problems of chemistry and its subfields; the peculiarities of chemistry and relations to technology, other scientific and non-scientific fields; aesthetical, ethical, and environmental matters in chemistry; as well as philosophically relevant facets of the history, sociology, linguistics, and education of chemistry. Most articles are in English but some are in German. The journal is available electronically twice yearly, free, and may be purchased as an annual printed volume. The website also provides online bibliographies; book reviews; links to related sites; and contents lists for over 80 other journals (Science studies current contents service).
This website provides full-text access to 'HYLE', a refereed journal which focuses on the philosophical aspects of chemistry (ISSN 1433-5158). It also provides extensive scholarly and practical information on the philosophy of chemistry. Articles in HYLE deal with problems in the epistemology, methodology, foundations, and ontology of chemistry and its subfields, as a distinct branch within the philosophy of science. The journal provides a forum for discussion as well as book reviews. It has a substantial international scientific board clearly identified on the home page. Most articles are in English but some are in German. Additional features on the website include a bibliography of resources on philosophy of chemistry, biographies of some philosophers of chemistry, a book review service, a conference calendar, detailed conference reports, a journals section with links to the tables of content for related journals both electronic and print, and links to pertinent sites.
The Indian Journal of Medical Ethics (IJME) is published four times a year by the Forum for Medical Ethics Society, India. It is dedicated to discussion of moral issues connected with medical practice and research especially those afflicting developing countries. The full text of all articles published since 1993 can be accessed without charge from this site. Among the topics explored include: ethics in nutrition intervention research; the social hierarchy of health; human organ sale; the ethics of induced abortion; the use of cadavers for anatomical dissection; ethical consideration in medical photography; cloning; and human values in genetics and embryo experiments. An interesting resource for students of medical ethics.
The Institute for Global Ethics (IGE) is an independent, non-sectarian and non-profit-making organisation established in 1990 in Camden, Maine. It aims to promote ethical action in a global context. This home page informs visitors about: the services they offer (to corporations, the education sector, non-profit organizations, individuals, foundations and governments); the products they have in store (e.g. books, whitepapers/reports, curricula, workbooks, DVDs/videos, CD-Roms and audiotapes); membership details; and news of upcoming events. A range of online resources are made available and these include the following: a list of FAQs; official documents; the institute's annual reports; book excerpts; full-text access to 'Ethics Newsline' - the institute's weekly newsletter which offers commentaries on the latest news in ethics from around the world; and a number of case-studies on ethical dilemmas in Business, Education, Children and Family, Medical, Philanthropy, Personal and Military contexts.
This is the homepage of the Institute for the Study of Christianity in an Age of Science and Technology (ISCAST Ltd), Australia. It is a non-profit company which focuses on the relationship between Christianity and developments in science and technology. Headed by Emeritus Professor John R Pilbrow, the institute engages in research, teaching and public debate. This website allows access to a number of resources useful for those studying Christianity and the ethics of science and technology. These include: the full contents of the institute's online journal; texts of the public lectures they organise; an online discussion forum; information about the activities they engage in; and an annotated list of links to relevant websites. Visitors are also allowed to view and download the institute's bulletin as well as a publication edited by Allan J. Day entitled Science and Spirituality: Approaches in a Post Modern World (ISBN: 095789340X).
Christian Perspectives on Science and Technology is the online journal of the Institute for the Study of Christianity in an Age of Science and Technology, Australia (ISCAST Ltd). This website allows access to material published from 1996 onwards, presented in PDF (and hence requiring Adobe Acrobat Reader). The contents can be browsed by category: articles; opinion; book reviews; reflections; discussions; and the editor's column. A search engine is also available. Titles featured include: The Genesis of Everything: A Historical Account of the Bible's Opening Chapter; Modern Science and Christian Belief Should be at Peace; The Impact of Einstein's Relativity on Christian Thought; and Biotechnology and Medical Ethics: Thinking Biblically About Contemporary Medicine. The resource would be of interest to those studying religion and the ethics of science and technology. The journal is edited by Dr Bruce Craven.
This is the homepage of the Institute of Applied Ethics (IAE) at the University of Hull. The institute is directed by Professor James Connelly and seeks to promote research on ethics in public decision-making. There are three main areas of work which the institute focuses on namely Biomedical Ethics and Law; Criminal Justice Ethics; and Political Ethics. This website informs visitors about the projects, activities (e.g. seminars and conferences), publications and events which the institute undertakes in each of these areas. There are also information about: recent news and events; the academic courses, programmes and research funding they offer; and the workshops they support. Access is given to the full-text of a small number of staff publications and links are provided to a number of relevant websites.
This is the homepage of the Institute of Human, Ethics and Science (IMEW). Established in 2001, the institute is based in Berlin and is headed by Dr Katrin Gruber. It engages in interdisciplinary and independent research in the field of medical ethics. It aims also to foster dialogue between the scientific community and society at large. This homepage contains information about its history, structure and vision. There are news about forthcoming events and links to relevant websites. Visitors can also view the full text of articles on issues like gene therapy; cloning; the selection and manipulation of human life; preimplantation genetic diagnosis; and the relationship between disability and ethics. A search engine is available. The site is accessible in German and English.
The International Association of Bioethics (IAB) seeks to bring together everyone working in bioethics and to promote discussion of cross-cultural issues amongst them. The Association's home page gives visitors an opportunity to view their constitution, which is available as PDF and RTF documents. Access is also given to their official newsletter, IAB News, and issues from 1996 onwards can be downloaded free from the site. Information on news and events and links to relevant websites are also provided. Users can further access the home page of Bioethics, the association's official journal, and that of its companion journal Developing World Bioethics (both journals require subscription to view the full text versions).
This is the homepage of the International Association of Catholic Bioethicists (IACB). Based in Canada, the organization was established to foster cooperation among Catholic bioethicists from around the world. It seeks to create a network for international colaboration that would enhance their participation in public discussions and to advance their thinking on various issues posed by developments in science and biotechnology. To this end, an international colloquium is organised every 2 years. Some resources on the site are only available to members. Visitors are nevertheless allowed access to 'Bioethics Herald', the association's newsletter, and a number of documents from the international colloquia. Information is also available about how to join their discussion group. Links are given to the homepages of relevant organizations from different parts of the world.
This is the homepage of the International Programme for Ethics, Public Health and Human Rights (IPEPH), an interdisciplinary forum based at the London School of Hygiene and Tropical Medicine (LSHTM). It was created to examine the ethical and human rights aspects of public health theory and practice. This website contains the following: an overview of the programme; details of its health and human rights work agenda; information about its research, consultancy, teaching, and postgraduate opportunities; a list of links to the homepages of relevant health and human rights organisations; and details of the programme's staff.
This is the homepage of the Irish Council for Bioethics - an independent organisation created in 2002 to consider the ethical issues brought about by developments in biological and medical research such as those relating to genetically modified organisms (GMOs), and the collection, use and storage of human biological material. Funded by Ireland's National Policy and Advisory Board for Enterprise, Trade, Science, Technology and Innovation, the Council examines and reports on such questions; and organises conferences, workshops and lectures to promote public participation and understanding. Reports published by the Council can be downloaded from this site. Other items made available include the minutes of all meetings held since its inception; details of forthcoming events and current projects; and partially annotated links to websites dealing with bioethics.
The Isaacs Report Web page provides access to the full text of a report by Her Majesty's Inspector of Anatomy which was published on the 12th of May 2003. It investigated the situation leading to the retention of Mr Cyril Mark Isaacs' brain during post mortem for purposes of medical research at Manchester University without the consent or knowledge of his relatives. The report also deals with the wider issue of the law, ethics, and current practice of organ retention by UK teaching and medical institutions. Recommendations for future action are made. The report is divided into the following ten sections: 'What happened after Mr Isaacs' death?'; 'Research on brains retained at post mortem'; 'The research programme of the departments of physiology and psychiatry of Manchester University'; 'Research at other locations on brains from coroners' cases'; 'The collection and use of brains for teaching'; 'Brain retention and the special hospitals'; 'Research funding organizations and Royal Colleges'; 'Approaches to post mortem and organ retention'; 'The importance of post mortem research to the future of health care'; and 'What has already changed and further changes that are needed'. These are delivered in 47 chapters, and the report contains 395 pages in all. A useful resource for students of medical ethics.
'Issues and Bioethics' is a website which medical ethicists and students would find interesting. The section on Issues explores the many breakthroughs that are taking place in the field of biotechnology. Presented are compilations of articles and official documents on Animal Genome and Plant Genome Projects, Environmental Management, and Gene Therapy. The second section on Bioethics examines the impact these innovations may have on individuals, groups and society. Included are transcripts of speeches and interviews, articles, official guidelines, and teaching and learning resources. These are organised under two headings: Social Practices and Policies; and Issues of Individual Decision-Making. The responsibility for this website lies with Access Excellence, an educational program set up in 1993 by Genentech Inc.
This is the homepage of the Johns Hopkins Berman Institute of Bioethics. Launched in 1995, the institute aims to promote research and to provide policy advice on the ethical dilemmas posed by advances in medical discovery. It is directed by the eminent medical ethicist, Professor Ruth Faden. This website contains information about: the academic programmes they offer (e.g. fellowships; training; degree programs; and short courses); the research programmes they carry out (in areas such as stem cell policy and ethics; ethics in clinical practice; and research ethics); events they coordinate; how to research bioethics literature; and news releases. Also provided are access to articles, and audio, video and Powerpoint presentations. Links to relevant online resources are also given. This should be a useful resource for students of medical ethics.
Joined: The World of Siamese Twins is a fascinating website offering useful information on the subject of conjoined (or 'Siamese') twins. After briefly describing the few known cases through the centuries, it discusses how they are formed and the different types of conjoined twins that have been identified. It then explores the viability of surgery to separate them and the ethical, religious and cultural considerations involved in such a monumental decision. Several high-profile cases are highlighted, including that of Laleh and Ladan Bijani, and 'Jodie and Mary'. Links are provided to relevant websites, including those specifically addressing the two aforementioned cases. This website, which is maintained by Channel 4 Television, would be an interesting resource for students on medical ethics courses.
The Journal of Ethics in Mental Health (JEMH) is an online peer-reviewed international publication dedicated to ethical issues connected to mental health. It is published twice a year and is edited by Ronald Ballantyne. All contents, which include articles, case studies and personal narratives, are available without charge from this homepage. Articles featured to date include: 'A critical reflection on utilitarianism as the basis for psychiatric ethics'; 'By what means? Conflicts of interest in professional ethics'; 'Ethical issues and tagging in dementia'; and 'Locked in syndrome, PVS and ethics at the end of life'. The site also contains information about the journal's submission policy and annotated links to relevant journals. The journal also organises a conference on 'Ethics in Mental Health' every two years. Visitors can access the audio recordings of the papers presented at these conferences.
This is the homepage of the Journal of Philosophy, Science and Law. Sponsored jointly by the University of Miami and the Georgia Institute of Technology, this peer-reviewed journal is edited by Dr Jason Borenstein and focuses on issues at the intersection between applied philosophy, science and the law. Works published to date include: 'Conflicts of interest in scientific research related to regulation or litigation'; 'Taking ourselves seriously: the relevance of Dworkinian principlism in genetic research'; 'Truth in legal practice'; 'Life, death, and politics: the long good-bye'; 'Preserving futility in young cancer patients: a medical, ethical and legal challenge'; and 'A biotechnology patent pool: an idea whose time has come?'. This website contains the journal's submission policy and allows free access to a selection of articles published since 2001.
This website allows access to the full-text of 'Key Topics on End-of-Life Care for African Americans'. This e-book features papers that represent the most important subject areas covered in a 2004 conference called 'The Last Miles of the Way Home'. The contents, organised into 12 chapters, touched on end-of-life issues which are unique to African Americans. These include concerns over the impacts of health disparities, as well as the spiritual, historical, sociological and cultural perspectives on death and dying in the African American community. Visitors can also view the biographies of the book's contributors and they are given annotated links to relevant websites. The project is jointly directed by Richard Payne, Gwendolyn London and Sharon Latson. The book itself is edited by Kevin Sanders. The site, which is maintained by the Duke Institute on Care at the End of Life, should be of interest to students on Medical Ethics programme.
This is the homepage of the medical ethics journal (ISSN: 1543 4672) published by the Lahey Clinic in collaboration with the Dartmouth-Hitchcock Medical Center, USA. The journal is published three times a year and is edited by Dr David Steinberg. This site allows full access to all contents published since 1997. Issues discussed include: the cloning of human beings; embryo adoption; euthanasia; soliciting organs on the internet; medical professionalism, dual loyalty and human rights at Abu Ghraib and Guantanamo; whether HIV-positive women can be forced to take medicine to protect their fetus; bioethics in culturally diverse societies; and fetal research. A useful resource for scholars and students of medical ethics.
The Linacre Centre for Healthcare Ethics aims to assist Catholics and others to explore bioethical issues from the perspective of Catholic moral teaching. Based in London, it operates under the trusteeship of the Catholic Trust for England and Wales, and the directorship of Dr Helen Watt. This homepage contains online papers written by their staff on a wide range of issues such as: abortion; AIDS; brain death; cloning; euthanasia; fertility treatment; genetics; hybrids/chimeras; organ donation; prolonging life; and stem cell research. On a few of these topics, viewers can also find the centre's submission to government committees and other official bodies. The site provides information about events organised by the centre (e.g. conferences and forums) and the facilities they are able to offer to researchers (e.g. a specialist bioethics reference library which holds over 6000 titles). Links to relevant websites are available. This would be a useful resource for those interested in Catholic Bioethics.
This is the homepage of the Prof. dr. G. A. Lindeboom Institute (PLI), a centre for medical ethics based in The Netherlands. The institute, which works within the Christian tradition, engages mainly in research and publication. This website informs visitors about its history, mission and range of activities. It allows them to access a number of articles and to search the institute's database. A search engine and lightly annotated links to relevant resources are provided. Visitors are also given access to the homepage of 'Ethics and Medicine', a journal which the institute co-publishes. This website is available in Dutch and English.
This webpage contains a full and up-to-date list of the General Medical Council (GMC)'s ethical guidance for doctors who are practising in the United Kingdom. Issues addressed include Consent; Confidentiality; Conflicts of Interest; Good Medical Practice; Maintaining Boundaries; Personal Belief and Medical Practice; Good Practice in Prescribing Medicine; Writing References; Withholding and Withdrawing Life-Prolonging Treatments; Reporting Gunshot Wounds; Acting as an Expert Witness; Raising Concerns About Patient Safety; Taking up and Ending Appointments; Reporting Criminal and Regulatory Proceedings Within and Outside the UK; Research; and Accountability in Multi-Disciplinary and Multi-Agency Mental Health Teams. Although directed at doctors, the list would be useful to students of medical ethics as it informs them of the standards to which medical practitioners in the UK are expected to conform to on the matters considered.
This is the home page of the Lithuanian Bioethics Committee (LBEC). The body was set up in 1995 to raise awareness amongst the biomedical community and the general public in Lithuania on ethical issues in health care. It seeks also to ensure that patients' rights are respected in research and clinical practice, and is responsible for coordinating the ethical review of research protocols in Lithuania. This website informs users of the Committee's background, roles and activities. Of particular interest to medical ethicists, students and researchers is a section which gives access to a number of Lithuanian legal documents including those on the ethics of biomedical research; genetically modified organisms; human tissue, organ donation and transplantation; and the protection of legal data.
This is the Bioethics website maintained by the Markkula Center for Applied Ethics at Santa Clara University. The materials are presented in three main parts. The first offers resources like articles; cases; policy recommendations; and reports on a vast array of topics related to biotechnology and ethics like cloning; access to health care; genetics; assisted death; culturally competent care; and the withdrawal of treatment. The second section acquaints visitors with the programmes offered by the Centre. In the third section, links are provided to other websites dealing with health care and biotechnology; end of life ethics; ethics and sciences; environmental ethics; and cloning and stem cell research. An interesting resource for students on Medical Ethics programmes.
This is the home page of the Institute for Ethics in Health Care based at the Medical Center Campus of Miami Dade College (MDC). The institute is concerned mainly with ethics education and decision-making related to ethical issues in health care. It is directed by Dr Carol Petrozella. This website contains resources which would be useful to those pursuing studies in Medical Ethics. These include: the abstracts of a small number of postgraduate theses; an online brochure; an ethics teaching primer; powerpoint slides; news reports; and the minutes from its advisory committee's meetings. The site also offers links to online articles on various subjects related to health care ethics. However, a number of the links were no longer available at the time this record was reviewed.
'Medical ethics' is a website which belongs to the BUBL LINK catalogue of internet resources. This resource contains a small number of links to evaluated and annotated online materials useful for the study of medical ethics like journals, directories, other databases and the home pages of relevant organisations. Each item is catalogued according to the Dewey Decimal Classification system and the links are regularly monitored. The site is well-organised and easy to access.
'Medical Ethics: An Online Textbook' is a resource prepared by Dr Philip A. Pecorino, a professor of Philosophy at Queensborough Community College, New York. The work, which is intended for the use of those teaching and studying the ethics of science and medicine, comprises seventeen chapters. The first six chapters discuss general issues like ethical traditions; the moral climate of health care; professionalism, elitism and health care; ethics and nursing; and rights, trust and consent. The subsequent chapters focus on specific topics central to Medical Ethics like human experimentation; abortion; care of the dying; euthanasia; infanticide; genetics; reproduction; the allocation of scarce resources; and a claim of a right to health care. Each chapter is divided into several sections and references are made, where appropriate, to other online resources. The site also makes available discussion topics for classroom use; access to electronic reference resources and other relevant websites; and a search engine.
This website makes available for online viewing sessions from the Medical Ethics and the Humanities in End-of-Life Care Medical Conference organised by San Diego Hospice and Palliative Care on the 20th and 21st of March, 2001. The following papers were delivered: 'Physician-Assisted Dying: Pro and Con'; 'Medical Futility'; 'Ethical Theories: Humanist, Natural Law and Utilitarianism'; and 'Advance Directives'. Speakers include: Thomas Beauchamp; Rita Marker; Larry Schneiderman; Ann Boyd; and Sue Rubin. Unfortunately, little information is provided except the videos themselves: there do not appear to be details of the speakers' credentials, nor transcripts or summaries of the presentations. RealPlayer is needed to access the videos, but this can be downloaded from the site without charge.
The Medical Research Council's Ethics and Research Guidance Web page provides access to material produced by the MRC to help scientists meet legal and ethical requirements, and to implement good practice. The information is arranged in broad categories, including: clinical research governance; consent to take part in research; data access; global bioethics; open access to published research; UK stem cell bank; use of animals in medical research; and use of human tissue. For topics requiring more detailed treatment, a link is often provided to the relevant section of the MRC's document library (documents are typically available as PDF and/or Word files). Although the primary intended audience of this site is scientists engaged in medical research, there is also much here that may be of interest to students and researchers of medical ethics.
This is the homepage of the New Zealand Catholic Bioethics Centre, a Wellington-based organisation also known as the Nathaniel Centre. It was set up in 1999 as an agency of the New Zealand Catholic Bishops' Conference and is directed by Dr Michael McCabe. The centre engages in several activities including education; research; and publication. It also serves as an advisory and resource centre in bioethics. This website offers brief information on several important topics in medical ethics like cloning; end of life issues; surrogacy; xenotransplantation; embryo adoption; genetic testing and engineering; and euthanasia. It allows access to the Nathaniel Report which features articles and updates on bioethics, and is published by the centre three times a year. The site also gives access to press releases and official submissions which the centre makes to different bodies. Annotated links are offered to the homepages of relevant websites.
This is the website of the National Advisory Board on Health Care Ethics (ETENE) which was set up in Finland in April 1998 to investigate and make recommendations on ethical issues relating to health care. This home page informs readers of the Board's background, role and membership. Official opinions and reports on the topics it investigated can be downloaded from here. These include: the future of health care in Finland; circumcision of male children; end-of-life care; medical research on children; compensation on harms caused by lobotomy; genetic screening; involuntary treatment in psychiatry; and legislation of infertility treatment. There are also links to relevant Finnish and international websites. This resource would be of interest to medical ethicists, students and researchers.
This is the home page of the body created in 1991 to advise on and to promote research ethics in Finland. On it can be found information about the board's composition and contact details. Also available are downloadable copies of the following resources: annual reports; publications (e.g. on ethical evaluation of research and on ethics committees in Finland); and proposals and guildelines (e.g. on good scientific practice and on how to prevent, handle and investigate misconduct and fraud in scientific research). The site can be navigated in English, Finnish and Swedish, and would be of interest particularly to those carrying out comparative work in the area. Links are also provided to relevant websites.
This is the home page of the National Animal Ethics Advisory Committee (NAEAC) - the body responsible for advising the New Zealand Government on ethical and animal welfare issues involved in research, testing, and teaching. Resources displayed on this website include: annual reports; newsletters; animal use statistics; and downloadable copies of works published by the committee, such as: guidelines (e.g. for the use of animals in research, testing and teaching; on the welfare of sheep, goats and cattle transported by truck within New Zealand; and codes of ethical conduct); codes of welfare (e.g. for circus animals; broiler chickens; and exhibit animals); and codes of recommendations and minimum standards (e.g. for animals in boarding establishments; animals at sale yards; and animals transported within New Zealand). This resource is suitable for undergraduate use.
This is the homepage of the US National Catholic Bioethics Center (NCBC). Established in 1972 and chaired by The Most Reverend Robert C. Morlino, the center conducts teaching, research, consultation and publishing in bioethics based on the official teaching of the Catholic Church. This website contains a number of interesting resources like: public policy reports; church documents; a state by state table of legal mandates; a Bioethics FAQs and Pastoral Resources; and NCBC's resources on stem cell research and human cloning. It also provides information about: the center's consultation services; publications; educational programs; news and events; membership; and other activities like seminars and workshops. The site gives access to the homepages of the center's two official journals - 'Ethics and Medics' and 'The National Catholic Bioethics Quarterly'. This should be a stimulating resource for those interested in the intersection between religion and medicine.
This is the homepage of the National Center for Bioethics in Research and Health Care based at Tuskegee University, USA. Established in 1999 as a partial response to the apology from Bill Clinton for the US Public Health Service (USPHS) Study of Syphillis in Tuskegee between 1932-1972, the center is dedicated to the exploration of ethical issues surrounding research and medical treatment of African Americans and other underserved people in the US. This website provides information on the academic programs they offer as well as the latest news on bioethics. There is also a section devoted to the USPHS syphilis study where viewers are given the opportunity to access resources like: background information and historical timeline of the events that took place; the final report of the Syphilis Study Legacy Committee; and a transcript and news coverage of the apology. The center is directed by Dr. Rueben C. Warren.
This is the home page of Norway's National Committees for Research Ethics. It offers an interesting insight into the Norwegian model of research ethics which creates and deploys the services of three national committees: one for Medical and Health Research; another for Research Ethics in Science and Technology; and the third for Research Ethics in the Social Sciences and the Humanities. Information on their historical background, roles and activities can be accessed from here as could the full-text of official reports they issued including those on research ethics guidelines for Internet research; guidelines for the inclusion of women in medical research; and guidelines for research ethics in the social sciences, law and humanities. An interesting resource for those studying research and medical ethics.
This is the official website of the National Council for Palliative Care (NCPC)(Registered Charity number 1005671). The organisation works to extend and improve palliative care services for patients suffering from life-threatening and life-limiting conditions. This homepage contains general information about the organisation including the events they organize and works they publish. There is also a section which explains what palliative care is; and an Ethics section which describes the work done by their Ethics Committee. The latter includes the Council's official response to the Assisted Dying for the Terminally Ill Bill. The site also contains a news room and links to relevant websites. This is a useful resource for those studying and researching on ethics at the end of life.
Neuroethics.ca is a website created by the Neuroethics New Emerging Team (NET) which is based at Dalhousie University, Canada. Launched in 2003, the NET aims to undertake an inter-disciplinary study of, and disseminate their findings on, the ethical issues posed by advances in neuroscience technology. It is led by Dr Jocelyn Downie and funded by the Canadian Institutes of Health Research. This website gives: background information about the field of Neuroethics and the NET's main objectives; summaries of the research projects undertaken by them; news of upcoming events; a list of their publications including access to a number of articles; and access to template texts and information booklets.
'Neuroethics.upenn.edu' is an online resource which deals with ethical issues raised by developments in areas like neurology, psychiatry, psychopharmacology, functional neuroimaging and brain implants. It is created and maintained by Professor Martha J. Farah, director of the Center for Cognitive Neuroscience at the University of Pennsylvania. Resources made available on the site include: summaries of neuroethics issues; links to downloadable articles and abstracts of articles; course syllabi; a conference calendar; information about educational programs and talk series at the university; a listing of relevant novels and films; and access to other websites. This should be a useful resource for students of medical ethics particularly those with a keen interest in the ethics of neuroscience.
This is the homepage of the NHS National Research Ethics Service (NRES) which was set up to protect the welfare of participants and to promote ethical research in the NHS. This website caters for three different groups. The first section is addressed to applicants (i.e. researchers, research support staff, sponsors and funding organisations). Resources here include: application procedure; news; guidance documents and a list of FAQs. The second section is for patients and the public. It contains, among other things, news reports and information on how to get involved. The third is addressed to the NHS Research Ethics Committees (REC) community. This page makes available tools for REC co-ordinators, and news and reviews. Visitors can also access general resources like NRES bulletin, activity data, leaflets, yearly reviews, and reports. A search engine and annotated links to relevant websites are available. This should be a useful resource for those interested in research ethics.
This is the home page of the Nordic Committee on Bioethics. The body was established in 1989 to foster debate and cooperation on bioethical issues amongst Nordic countries. The website informs viewers about the committee's responsibilities; membership; working approaches; and contact details. Resources made accessible include details of events organised by the committee, and downloadable copies of materials published by them on issues such as how best to teach bioethics; biotechnology legislation in the Nordic countries; who owns our genes; and ethical issues in human stem cell research. The site is easy to use and the contents come in two versions - English and Nordic. An interesting resource for students of medical ethics, particularly those undertaking comparative work.
Novel Tech Ethics is an initiative based at Dalhousie University, Canada. It focuses on the ethical issues posed by novel technologies (e.g. neural, reproductive and genetic technologies) and engages in research, knowledge transfer and public education. This website informs visitors about their research projects; symposia, workshops and conferences; training and grant opportunities; job vacancies; and awards, scholarships and fellowships. Access is given to a number of resources including scholarly articles; public reports; newsletters; and information about recent news and events. Annotated links are provided to the homepages of relevant organizations; podcasts; blogs; and other web resources. A search engine is available.
The Nuffield Council on Bioethics was launched in 1991 in response to increasing public anxiety generated by rapid development in biological and medical research. Its brief was to identify and investigate areas of particular ethical concern and from there to produce reports and discussion papers that would be useful to the public and policy makers. These documents, as well as the Council's annual reports and newsletters, can be accessed from the site. Issues examined to date include: the forensic use of bioinformation; genetic screening; xenotransplantation; genetics and human behaviour; pharmacogenetics; medical research in developing countries; genetically modified crops; and stem cell therapy. More recent reports can be found in the Council News section. Also available are: links to the homepages of other bioethics organisations and relevant online resources; press releases; and video recordings of lectures. This resource would be useful to undergraduates and postgraduates on medical ethics courses.
This website presents a copy of the Nuremberg Code on Medical Intervention and Experimentation which was drawn up at the conclusion of the Doctors' Trial which took place in Nuremberg between December 1946 and July 1947. Designed to ensure that the atrocities committed during the Second World War where 23 German doctors and scientists stood accused of performing inhumane and fatal medical experimentations on concentration camp inmates do not occur again, the code provides guidelines for the protection of human subjects in medical research. It contains 10 articles, covering issues like consent; information disclosure; voluntariness; and the right to withdraw. This website, which is a useful resource for those interested in medical and research ethics, is maintained by the US National Institutes of Health's Office of Human Subjects Research.
This is the homepage of the Office for Human Research Protections (OHRP) at the US Department of Health and Human Services (HHS). The office is responsible for providing guidance and leadership on the system to protect those participating in research conducted or supported by the HHS. This website provides: information on how to obtain approved assurance from OHRP; policy guidance on topics like HIV/AIDS, emergency research, pharmaceutical companies, prisoners, and stem cells; a list of FAQs; details of the conferences and educational activities they organize; and links to ethical codes and regulatory standards. A useful resource for those interested in research and professional ethics.
This is the homepage of the Office of Human Subjects Research (OHSR). Operating within the Office of the Deputy Director for Intramural Research at the US National Institutes of Health (NIH), the OHSR was set up to acquaint researchers in the Institutes' Intramural Research Program (IRP) with the ethical guidelines and regulatory requirements for research involving human participants. Resources available to the public include: details of activities they undertake; downloadable information sheets and forms; documents related to NIH's Human Research Protection Program; and access to regulations and ethical guidelines. A search engine is provided. This should be an interesting resource for those studying research ethics.
'Online Ethics Center (OEC)' is a website maintained by the (US) National Academy of Engineering. It aims to facilitate access to resources that address the ethical concerns faced by scientists, engineers, and science and engineering students in their work. The main part of this website contains materials like essays, cases, educational resources and ethical guidelines for the following topics: Safety and the Environment; Professional Practice; Employment and Legal Issues; Responsible Research; and Computers and New Technology. There are subsidiary sections that provide resources like: a glossary of terms; and the Codes of Ethics issued by a number of scientific and engineering professional organizations. Access is also given to an 'Ethics Case Discussions Webforum'. A search engine is available.
This website gives access to the full text of the World Health Organization (WHO)'s 'Operational Guidelines for Ethics Committees that Review Biomedical Research'. Published in 2000, the document aims to facilitate and support ethical review of research involving human subjects around the world. Issues touched on include: the role and constitution of an ethics committee; how to establish a system of ethical review; how to submit an application; review and decision-making; how to communicate a decision; documenting and archiving; and follow-up. It also provides a glossary of terms. Apart from English, the document is available in Amharic, Chinese, French, German, Japanese, Korean, Laotian, Polish, Russian, Spanish, Thai, Turkish, and Vietnamese - all of which are accessible from this website.
Opticon1826 is an full-text postgraduate ejournal, published from University College London. At July 2009 there are six issues online, freely offering editorials as HTML files and articles as PDF files. Creative work, commentaries, and research notes are also published. There is no statement of scope, but judging by the first six issues the journal mixes literary and film analysis with examinations of the ethics inherent in biomedical technology, third-world development, and the contemporary workplace. Example article titles of interest to those in the humanities include: 'Writing the Unthinkable: Narrative, the Bomb and Nuclear Holocaust'; 'Itís all about the Money? Issues for the Regulation of Genetic Testing'; 'A Spectral Turn around Venice: following in the footsteps of John Ruskin'; 'Monstrosity, Anxiety and the Real: Representations of the Victorian Metropolis in David Lynch's 'The Elephant Man'; 'Scopic Regime and Organised Walking: A Typological Study on the Modern Museum'; and 'Multilingual London and its Literatures', among others. There are details of the editors and Editorial Board, the faculty reviewers, and the submissions process.
Passed by the US State of Oregon in 1997, the Death with Dignity Act allows terminally ill adult Oregonians to end their lives through the voluntary self-administration of lethal medication prescribed by their doctors. This website is produced by the Oregon Department of Human Services and it provides information on the Act's history and operation. Included are: a copy of the legislation itself; the relevant forms used by participants; annual reports; press releases; and a list of FAQs. The site provides a search engine and can be accessed in over 20 languages. This would be a useful resource for those studying the ethics and permissibility of euthanasia in other jurisdictions.
The Oxford Uehiro Centre for Practical Ethics was established in 2002 and is directed by Professor Julian Savulescu. The centre forms part of Oxford University's Philosophy Faculty and was set up with funding received from the Uehiro Foundation on Ethics and Education in Japan. Its range of activities include research, teaching and public lecturing. This website makes available a number of online resources which can be accessed without charge. These include articles and videos on topics like stem cell research; cloning; end-of-life decisions; predictive genetic testing; genetic, cognitive and sports enhancement; kidney sales; and addiction. It also contains a section on news report and provides links to the centre's newsletter and relevant websites. An interesting resource for students on medical ethics programmes.
The Panel on Research Ethics (PRE) was created by the Canadian Institutes of Health Research (CIHR), the Natural Sciences and Engineering Research Council (NSERC), and the Social Sciences and Humanities Research Council (SSHRC) in November 2001. This is to help ensure that research involving human participants is conducted ethically in Canada. This website informs users of the panel's background; terms of reference; policy initiatives; projects; and publications. They are also given information about current news and events; and these are complemented by a list of FAQs and useful links to relevant websites from Canada and elsewhere. The site can be accessed in English and French.
The Park Ridge Center for Health, Faith and Ethics is an independent, non-profit and non-sectarian organization based in Illinois, USA. It carries out teaching, research and consultation in the intersection between health, faith and ethics. This homepage gives free access to the center's three main publications: its bimonthly Bulletin; Second Opinion - the center's peer-reviewed quarterly journal; and E-Ethics, its monthly newsletter. The site also gives information about the center's mission; educational programs; consultancy services; and other works published by them. A search engine is provided as are links to relevant websites. It does not, however, appear that the site is regularly updated. The existing materials would nevertheless be of value to those interested in the interaction of health, faith and ethics.
The Patients Rights Council (formerly International Task Force) is a non-profit educational and research organization that deals with euthanasia, assisted suicide and end-of-life issues from a public policy perspective. This website provides information (through news reports; updates on laws; articles; factsheets; statistics; annual reports; and related materials) on issues connected with those themes (e.g advance directives; cost containment; and artificial feeding). Its geographical coverage is wide, dealing both with the situation in different states in the USA and those in other parts of the world. The site provides a search engine and a list of FAQs.
This website provides access to the fifth edition of 'Perspectives on Death and Dying: An Online Textbook'. The work was edited by Dr Philip A. Pecorino, a professor of Philosophy at Queensborough Community College, New York. This edition is available only as an electronic text but all documents are also provided in PDF for those wishing to print them. Adobe Acrobat Reader can be downloaded from the site. This online textbook is primarily intended for teaching purposes, but it would also benefit anyone with an interest in end of life issues. The work contains twelve chapters in all: Introduction; Literature and Death: A Case Study; Learning from the Dying; Caring for the Dying; Anticipatory Grief and the Family; Grief; Anthropology and Death: Different Cultures; The Definition of Death; Transplantation and Other Uses for Dead Bodies; End of Life Decisions; Infanticide; and Deciding Who Lives and Who Dies.
This is the homepage of Perspectives on Science and Christian Faith (PSCF), an official publication of the American Scientific Affiliation. The journal publishes works which engage with the intersection between science and Christianity. It is edited by Arie Leegwater of Calvin College and is published four times a year. This website contains the journal's submission policy. It allows free access to materials published since 1949 to the present day. The more recent issues are available in PDF and requires Adobe Acrobat Reader for access. Titles featured include: 'An examination of a proposed new religion based on science'; 'Empirical social science and Christian faith'; 'Thinking critically and Christianly about technology'; ''From scientific method to methodological naturalism: the evolution of an idea'; 'Prospects for theistic science'; and 'Conflicts between Christianity and physical science'. Search facilities are available that would enable searches to be conducted by words in the title, author and date of publication.
This web page provides a host of links relating to the contemporary ethicist and philosopher, Peter Singer (1946- ). Singer is currently the Ira W. DeCamp Professor of Bioethics at the University Centre for Human Values, Princeton University, and his work is relevant to scholars in the Humanities and Sciences who are interested in matters of applied ethics. Well-known for his writings on animal rights, utilitarianism and ethical responsibility, he has taken strong positions on controversial issues such as euthanasia, the distribution of the world's resources, experimenting on animals and in vitro fertilization. The page offers links to extracts from Singer's books, to articles and letters by Singer, and to reviews of his work (some texts are in PDF). There are also links to a number of interesting audio and video recordings of Singer speaking in interviews, panel discussions and lectures, some of which can be accessed with RealPlayer or Windows Media Player.
This is the homepage of the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School. The center was founded in 2005 with funding received from Joseph H. Flom and the Petrie Foundation. Directed by Professor Einer R. Elhauge, the center seeks to encourage and facilitate interdisciplinary analysis of the legal issues surrounding health care, biotechnology and bioethics. This website contains information about forthcoming events (e.g. workshops; conferences; research projects) and the fellowships on offer. It allows access to their webcast archive; and the full-text of papers from the workshops they organise and the research projects they sponsor. Visitors can also access the publications of staff members from their homepages. Links are provided to the homepages of relevant organisations and journals.
PharmacoEthics.com is a website which focuses on the ethical issues involved in the manufacture, marketing, sales, prescription and use of pharmaceutical products. It offers a selection of articles including those related to ethics in the pharmaceutical industry; physician prescribing practices; and pharmaceutical research. There is also a small collection of news reports which feature issues like drugs for AIDS patients and unethical drug trials. Links are provided to the homepages of relevant organizations and other websites of interest. This resource is part of the EthicsWeb.ca site maintained by Dr Chris MacDonald, an associate professor in the Philosophy Department at Saint Mary's University, Canada. It would be of interest to those studying research or medical ethics.
This is the official website of the Pharmacy Law and Ethics Resource Centre. It contains a range of materials targeted at those teaching healthcare law and ethics to undergraduate Pharmacy students. These include information about the latest news; annotated links to relevant websites; an email discussion group and membership details for the Pharmacy Law and Ethics Association. Teaching resources offered include: an outline of the Pharmacy Undergraduate Law and Ethics Core Curriculum (whereby information and links are provided on resources useful for the study of the structure and function of health services, trading and workplace issues, sale and supply of poisons and spirits, sale and supply of medicines, the underpinning legal structures, professional regulation, professional governance and ethics); details about non-core topics like pure ethics and research ethics; and other teaching and assessment tools. The site is funded by the Higher Education Funding Council for England (HEFCE) and is part of the 'Advancing the Provision of Pharmacy Law and Ethics Teaching (APPLET)' project led by Professor Joy Wingfield of the University of Nottingham.
This is the homepage of 'Philosophy, Ethics and Humanities in Medicine', a peer-reviewed online journal (ISSN: 1747 5321) which publishes work on the philosophy of medicine and biology, and ethical aspects of clinical practice and research. Users can access without charge all materials published since 2006 from here. These include articles, book reviews, editorials, and commentaries. The site also contains the journal's submission policy; lists of the 10 top most accessed articles in the last 30 days, past year and all time; a list of FAQs; a search engine; and news of upcoming conferences and symposiums. The journal is edited by Michael Schwartz of the University of Loiusville and Dan J. Stein of the University of Cape Town. It is published by BioMed Central Limited.
'Physician-Assisted Death' is a website created and maintained by Professor Valerie J. Vollmar of Willamette University College of Law. It provides useful information on the ethico-legal developments relating to physician-assisted death particularly in the US. Three reports are provided for every year since 1997, each of which deals with the following subject-matters: litigation, legislation; medical developments; and other developments within the US and other parts of the world. These are made available in PDF and would require Adobe Acrobat Reader for access. The site is user-friendly and would benefit undergraduates and researchers looking for information on the subject. At the time this record was reviewed, the site does not seem to have been updated since 2009.
This is the website of the 'Physics and Ethics Education Project (PEEP)' which is based at the University of Bristol. Funded by the Institute of Physics (IOP), the project aims to support secondary school science teachers and students when dealing with ethical issues relating to physics. It contains an Ethics Toolkit which looks at the following topics: the frameworks for making decisions; reviewing information for bias; giving credit; creating knowledge; and the physicists' ethical code. The site also contains information that could help students explore ethical issues in specific areas like climate change; energy resources; transport; weapons; space; communications; and robotics. There are likewise resources for teachers that aim to assist them in managing discussion based lessons and to plan lessons. The website provides a glossary of terms; a discussion forum; a news archive; and a search engine. The material contained therein would also be useful to undergraduate students.
This is the homepage of the Policy, Ethics And Life Sciences (PEALS) Research Centre. Based in Newcastle-upon-Tyne, the centre was jointly set up by the Centre for Life, the University of Durham and the University of Newcastle in 1999. The Centre seeks to advance research and public discussion on ethical and socio-political issues associated with the life sciences. This website carries useful information on: current research projects and completed projects (on topics like Memory and Forgetting, the Cumbria Genetics Database, and Ordinary Ethics); news and current events; relevant publication; research seminars; conferences; their public engagement activities and Continuing Professional Development Programmes. Also available are downloadable copies of their newsletter and an annotated list of relevant websites.
This website presents the Organ Donation Taskforce's report on the potential impact of the introduction of an 'opt out' (or 'presumed consent') system for organ donation in the UK. The Taskforce, chaired by Elisabeth Buggins, was asked about the measures required to introduce an opt out system in the UK; whether the adoption of this system would increase the number of organ donors; and whether the public would be in favour of such a move. After consulting and discussing with academics, health care professionals, religious leaders and groups, members of the public, organ recipients, and families of organ donors, the Taskforce recommended that an opt out system should not be introduced in the UK for the time being. These are in view of the fact that it might, among other things, undermine the idea of donation as a gift; erode the trust between patients and health care professionals; and distract attention away from the need to improve public awareness about the significance of organ donation. The report, which was published by the Department of Health on the 17th of November 2008, should be of particular interest to students of medical ethics. This webpage allows free access to all its 15 chapters as well as the evidence the Taskforce has accumulated which are presented as annexes to the report. The resource is presented in PDF, hence requiring Adobe Acrobat Reader.
This website is a welcome addition to the growing numbers of online resources that discuss the latest developments in science, technology and other current affairs. It provides a daily ethical analysis of news in these areas and the commentators are drawn from the following 3 research centres at the University of Oxford: the Future of Humanity Institute; the James Martin 21st Century School; and the Oxford Uehiro Centre for Practical Ethics. Members of the public are also encouraged to contribute to the discussion. Among the topics discussed include: global warming; environmental ethics; neuroethics; hybrid embryos; elective caesarean section; information ethics; organ donation; business ethics; and teenage pregnancy. In addition to recent posts and comments, the site enables access to all materials produced since November 2007.
This is the home page of the body set up in 2001 to advise the US Government on the ethical issues associated with developments in biomedical science and technology. This website contains background information about the council; transcripts of meetings; and official reports of areas investigated. Amongst the topics considered are: cloning; assisted reproduction; genetics; nanotechnology; ageing; drugs, children and behaviour control; organ transplantation; stem cell research; and embryo research. Also provided are links to related sites and a list of all former US national bioethics commissions and their reports.
This website allows access to the General Dental Council (GDC)'s booklet entitled 'Principles of Patient Confidentiality'. It was published in May 2005 and this reprinted version was released on the 31st of October 2009. The document, which can be downloaded without charge, seeks to acquaint dental professionals with the significance of the ethical principle of protecting the confidentiality of patients' information. The contents are presented under the following headings: Duty of Confidentiality; Releasing Information with the Patient's Consent; Preventing Information Being Released Accidentally; and Releasing Information in the 'Public Interest'. Students of health care ethics should find this an interesting resource.
This website allows access to the online version of the General Dental Council (GDC)'s booklet on 'Principles of Patient Consent'. It was published in May 2005 and this reprinted version was released on the 31st of October 2009. The document is presented in PDF, hence requiring Adobe Acrobat Reader for access. It aims to acquaint dental professionals with the ethical principles involved in getting patient consent. Attention is drawn to the significance of information disclosure; voluntary decision-making; and competence. An interesting resource for students of health care ethics.
This is the homepage of the Centre for Professional Ethics at Keele University (PEAK). Directed by Professor Stephen Wilkinson, the centre offers postgraduate ethics courses as well as training for research ethics committees in the UK. This website contains information about: the programmes, training and consultancy services available; and their staff members' contact details and areas of research interests. The site provides annotated links to online resources on: academic writing and study skills; software for academic writing and research; and ethical issues in the news. Users are also able to access the homepages of relevant organisations from here. The site contains a search engine and news of forthcoming events.
This is the homepage of the Queensland Bioethics Centre (QBC), a community service which was set up in 1981 under the sponsorship of the Roman Catholic Archdiocese of Brisbane, Australia. Directed by Ray Campbell, the centre is responsible for providing: regular briefings on developments in bioethics; a resource library; workshops; education, advice and respresentation; and an online resource centre. This website allows visitors to search their library holdings. It also provides factsheets, notes and articles on issues like euthanasia; IVF; status of the embryo; cloning; stem cell research; the beginning of life; and abortion. The site contains media releases; information statements prepared by the centre; and unannotated links to the homepages of relevant organisations.
The Rachel Carson website is a simple but well presented resource devoted to the life and writings of the important biologist, writer and ecologist, Rachel Carson (1907-1964). Best known for her famous 'Silent Spring', which was the first examination of the effects of pesticides on plants, animals and humans, Carson was a pioneer of the environmental movement. This site successfully illustrates the links between scientific study and creative response which is a strong feature of environmental writing. The straightforward layout uses a home page with a sidebar of headings which serve as a useful introduction to Carson's work and provide direction for further research. The headings include biography and obituary pages, information on recent publications on Carson's life and work, full lists of her own publications, a comprehensive list of resources for further study and links to related sites. There are also pages of information on forthcoming conferences and recent articles, some of which appear in full-text versions. This site is regularly updated and very easy to navigate.
This website takes visitors to the Department of Health's Reference Guide to Consent for Examination or Treatment. This downloadable document explains a wide range of issues relating to what constitutes consent in the context of medical treatment as well as in the use of removed tissue, video-recording and clinical photographs. Guidance is given on crucial concepts like the capacity for giving or withholding consent; voluntariness; and disclosure. The document further describes the situation as regards adults who are unable to give consent and distinguishes between circumstances where the incapacity is temporary, permanent/longstanding or fluctuating. The complexities as regards young patients are likewise addressed. Significantly, guidelines are offered on how to deal with children under the age of 16, and those between the ages of 16 to 17. Their participation in research and potential as bone marrow donors are also outlined. The document then refers to the withdrawing and withholding of life-prolonging treatment for adults and children with and those without the capacity to give consent, before highlighting the exceptions to the general principles discussed.
This is the homepage of the Research Center on Computing and Society which is based in the Philosophy Department at Southern Connecticut State University. It provides an extensive number of research, teaching and learning resources on Computing Ethics which can be accessed without charge. These include news articles and academic articles on topics like 'What is Computing Ethics?'; 'The Computer Revolution and Global Ethics'; and 'Ethics in the Information Age'. There are also the full-text of monographs on titles like 'Equity and Access to Computing Resources'; 'Computing Security'; 'Computing and Privacy'; and 'Computer Ethics and Professional Responsibility'. The site provides links to multimedia materials and the homepages of relevant organizations. The center is directed by Terrell Ward Bynum, a professor of philosophy at the university.
This web-based instructional site on Responsible Conduct in Research is provided by Eastern Michigan University. It contains the following 9 modules which are available in PDF format: Protection and Use of Human Subjects in Research; Conflicts of Interest in University Research; Data Acquisition, Ownership, Management and Sharing; Animal Care and Use in Research; Research Misconduct; Publication Practices and Responsible Authorship; Mentor/Trainee Responsibilities; Peer Review; and Collaborative Research. The resource is supported by the (US) Office of Research Integrity (ORI); Office for Human Research Protection (OHRP); and the Office for Research Development. This should be a useful resource for those interested in research ethics.
This website makes available online the report of the Royal Liverpool Children's Inquiry. Established in 1999 and chaired by Michael Redfern QC, the Inquiry's terms of reference were as follows: to enquire into the removal, retention and disposal of human tissues and organs following post mortem examination at the Royal Liverpool Children's Hospital; to report on the professional practice, management action and systems in place; and to make appropriate recommendations. Its final report, which was divided into fifteen chapters and published on the 30th of January 2001, can be downloaded from here in PDF format. The site also offers a short summary of the key findings and main recommendations contained in the Report, and this is available in Welsh and English. Students of Medical Ethics and researchers would find this a useful resource.
This is the personal homepage of Dr S. Matthew Liao, the Deputy Director of the Program on the Ethics of the New Biosciences in the Faculty of Philosophy at the University of Oxford. The site makes available his published works as well as those in the process of being published. Presented in HTML and PDF, they cover different areas in Philosophy such as Bioethics; Ethics; Metaphysics; Moral Epistemology; Moral Psychology; and Neuroethics. These include articles like: 'The Right of Children to be Loved'; 'Selecting Children: The Ethics of Reproductive Genetic Engineering'; 'Rescuing Embryonic Stem Cell Research: The Blastocyst Transfer Method'; and 'The Basis of Human Moral Status'. Readers are invited to comment on these works. The site, which should be of interest to students of Philosophy, contains a search engine.
This campaign website documents the extraordinary ordeal experienced by Sally Clark and her family following her arrest and imprisonment for the murder of her two infant sons. The conviction, which was heavily influenced by Professor Roy Meadows' evidence that the probability of 2 cot deaths occurring in the same family stood at 73 million to one, was quashed by the Court of Appeal on the 29th of January 2003. This resource, which would be useful to medical ethicists and students, charts the history of the case from 1996, the year her first son died, to Sally Clark's own death in March 2007. It makes available press releases and statements issued by her and her family throughout this time; and media coverage of important events relating to the case. Visitors can also access the full judgement of the Court of Appeal from this site.
This website links readers to the online version of Saving Lives, Valuing Donors: A Transplant Framework for England produced by the Department of Health's Transplant Policy Team. Published in July 2003, the document maps out the major aims for organ and tissue transplantation in the UK for the following ten years. In the main, it provides guidance to the UK government, health professionals and other stakeholders on how to: encourage more people to consider being organ and tissue donors; improve the overall quality and effectiveness of transplant services; and enhance the clinical outcomes for donees. This should be an interesting resource for students on Medical Ethics courses.
This is the homepage of the Scattergood Program for the Applied Ethics of Behavioral Health (Scattergood Ethics) which is based at the University of Pennsylvania's Center for Bioethics. The program, which was launched in June 2007, is funded by the Scattergood Foundation and the Dean's Office of the University of Pennsylvania School of Medicine. This website informs visitors about their research, education, and training activities. It allows access to a number of resources like annual reports and press releases; commentary on a range of topics relevant to behavioral and mental health ethics; recent news and events on these areas; the audio and video recordings of talks and interviews; and annotated links to the homepages of relevant journals and organizations. A search engine is available.
This is the homepage of the Scottish Council on Human Bioethics (SCHB)(registered charity number: SC034372). It was established in 1997 to encourage and facilitate bioethical discussion and analysis in Scotland. This website provides access to a number of publications which students of Medical Ethics would find interesting. These include conference reports; papers; position statements; consultation responses; letters; briefings; press releases; and news items on issues like animal-human combinations; bioethics; disability; embryos, cloning, genetic screening and assisted reproduction; euthanasia and suicide; sexual health; and transplantation of organs. The site also offers news of events and links to the homepages of relevant organisations and journals. SCHB is presided over by Professor Anthony Busuttil.
This is the homepage of the Scottish Partnership for Palliative Care (Scottish Charity Number 017979), the national umbrella organisation for palliative care in Scotland. It aims mainly to increase the availability of palliative care to those who could benefit from it and to enhance the quality of the services provided. This website explains what is meant by palliative care and provides links to other sites that hold useful information on the subject. Also available are general information about the organisation; official reports; downloadable publications; a news room; and information on courses and conferences related to palliative care. A search engine is available. This would be an interesting resource for those studying ethics at the end of life.
This is the online version of 'Seeking Consent: Working with Children', a document published by the Department of Health in November 2001. It aims to highlight and offer guidelines on the legal and ethical complexities which may arise when consent is sought from children and their parents in the medical context. Among the important issues discussed are: whom consent should be sought from; how this should be carried out and what factors would need to be taken into account when so doing; what should be done in difficult situations where a procedure is not to benefit the child directly (e.g. consent for bone marrow donation); and consent to treatment for mental disorder and research. This resource would be particularly interesting to medical ethicists and postgraduates researching on consent.
This website enables users to view online the proceedings of the conference on 'Sequencing the Future: Ethical, Legal and Social Issues Arising from the Human Genome Project' held on the 21st of April, 2001 at California State University, Long Beach. In addition to the introductory speech and panel discussion, available are the presentations on the following papers: 'A Short Genetics Primer'; 'Behavioral Genetics, Genetic Technology, and the Problem of Public Understanding'; 'Predictive Genetic Testing Discrimination'; and 'On the Prospect of Inheritable Genetic Enhancements'. RealPlayer is required to view the materials and this can be downloaded free from the site. This website should be a useful and interesting resource for those concerned about the ethical issues surrounding developments in genetic technology.
This is the official website for the Society for Applied Philosophy, a British organisation founded in 1975, and a forerunner in promoting rigorous philosophical work with a strong practical and social relevance. The society publishes the Journal of Applied Philosophy since 1984, the contents of which can be viewed from here. Access to full content is nevertheless restricted and is available only to subscribers. The Society organises lectures, workshops, and an annual conference. Information on current and forthcoming activities can be found on the site, along with an archive of previous events. The society invites proposals for future workshops. Membership of the Society is open to all interested parties, and instructions on how to join are given. This site is of interest both to students and teachers of philosophy working in areas of practical concern, such as applied ethics, science, law, education, politics, and medicine. It is also of interest to practitioners or students of those professions seeking informed but accessible debate about important or controversial issues within their field.
This is the homepage of the Stanford Center for Biomedical Ethics (SCBE). Based at the School of Medicine at Stanford University, the center carries out interdisciplinary research and training in bioethics and provides consultation in clinical and research ethics. Resources available from the site include: general information about the organization and the courses and consultation they offer; and details of research programs they carry out in areas like genetic ethics; ethics of stem cell research; and neuroethics. Also accessible are SCBE's newsletter; powerpoint slides of presentations; articles; annual reports; information about news and events; and links to websites of interest. A search engine is available. The center is directed by Dr David Magnus.
This website holds an excellent range of information on stem cell research and the ethical debates surrounding it. It is maintained by the US National Institutes of Health (NIH) and can benefit anyone interested in stem cell research ranging from beginners to scientists, policy-makers and medical ethicists. Resources available include: a general introduction and reports on stem cell research; a glossary of terms; a list of FAQs; annotated links to other online resources on stem cell and bioethics; information about the activities and projects carried out at the NIH and of the institute's role in Federal Policy; downloadable photographs and illustrations; a video of stem cell dividing; official statements and testimony; policy and guidelines; and congressional legislation. It also features news headlines about stem cell; and information on grants, funding, and upcoming events. A search engine is available.
This is the homepage of The Netherlands Centre for Ethics and Health (CEG). The organisation was jointly created by the Health Council of The Netherlands and the Council for Public Health and Health Care to help identify areas in health and health care which merit political attention. This website contains a brief discussion of ethics and allows online access to its official reports. Information is provided about law, legislation, publications and recent events. Links are also provided to the homepages of relevant organisations. The site can be accessed in English and Dutch. A search engine is available. This resource would be interesting to medical ethics students, particularly those undertaking comparative work.
Toi te Taiao: the Bioethics Council was the homepage of the body formed by the New Zealand Government in December 2002 to help ensure that decision-making in the realms of genetic modification and biotechnology took into proper account ethical, cultural and spiritual considerations. The council was officially disestablished in March 2009, and from January 2010 the Ministry for the Environment has retired this Bioethics Council website. All content has been removed except for: Bioethics resources and links, and 'Deepening Democracy: New Initiatives in Public Participation'. There is a general link to the location of other site achives on the National Library (NZ) website.
'The Transplant Trade' was first shown on Channel 4 Television in April 2004. It highlighted the prevalence of transplant tourism: where those in need of organ transplantation illegally purchase kidneys from living donors from other countries (particularly South Africa, India and the USA). The programme explores difficult ethical questions such as whether people should be allowed to sell their organs, and whether the transplant trade should be legalized. This website aims to provide further information about the issues explored in the documentary. It presents annotated links to the homepages of relevant organizations; news stories; and websites dealing with organ donation, transplantation and related issues. It also suggests a number of print-based materials that could be consulted.
This website allows access to the full text of 'The Truth About AIDS' (ISBN: 085476495X) without charge. Written by Dr Patrick Dixon and published by Kingsway in 2004, the book explores the medical, social and political dimensions of the AIDS pandemic. The discussions, which are organised into 16 distinct chapters, would be of interest to students of Medical Ethics particularly the chapters on the moral dilemmas in AIDS work; life and death issues; and special AIDS/HIV issues in Africa and Asia. The site contains several brief reviews of the book and links visitors to the homepage of AIDS Care Education and Training (ACET) International Alliance.
This is the homepage of the Center for Clinical Ethics and Humanities in Health Care at the University of Buffalo, USA. The multi-discplinary centre was launched in 1994 and is jointly directed by Drs. Gerald Logue and Stephen Wear. The site allows access to the online edition of 'Ethics Committee Core Curriculum: An Orientation Manual for Ethics Committee Members' published by the center, and all copies of Bioethics Bulletin, the center's newsletter. Also available are resources on end of life issues like advance directives; do-not-resuscitate orders; and physician-assisted suicide. These include links to sites which provide discussions, booklets, legislation, case law, and reports. The materials focus mainly on New York. A search engine is available. This should be an interesting resource for students of medical ethics.
The UK Clinical Ethics Network was launched in January 2001 to offer information and support to established and developing Clinical Ethics Committees around the country. This website contains a list of all committees registered with the Network; links to the policies and guidelines issued by national bodies on dilemmas that are frequently confronted by such committees; details of national and international courses and conferences; and the Network's newletters. The site provides several case studies and lengthy discussions on issues like confidentiality; consent; the end of life; resource allocation; and ethical frameworks. There are also commentaries on recent cases and legislations; and links to the homepages of journals and relevant professional organisations - all of which would be of interest to students of Medical Ethics.
This is the homepage of the University of Miami Ethics Programs. The initiative offers training, and undertakes research and community service in areas like bioethics; business ethics; professional ethics; geriatrics and ethics; environmental ethics; health research ethics in the Americas; guardianship and ethics; and genetics and ethics. The site provides information about the programs, projects, conferences and events they coordinate. It also contains a section dedicated to the Terri Schiavo case and annotated links to web resources for ethics. A search engine is available.
This is a website produced by the University of Minnesota to help familiarise those conducting research in the Health and Biological Sciences, and the Social and Behavioural Sciences, with the intricacies of 'informed consent'. Divided into several user-friendly modules, the resource provides, among other things, some background information about informed consent (e.g. its history, the basic principles and what the process usually involves); explanations about how to select participants and how to obtain their consent; and help on how to create a consent document. Users can then test their knowledge and understanding by answering a number of true/false and multiple choice questions listed at the end of the instruction. This resource would be useful to teachers and students of medical ethics.
This is the home page of the University of Toronto Joint Centre for Bioethics (JCB). This website acquaints visitors with its main areas of activities, namely: research; education; clinical ethics; public outreach and consultancy. Resources provided include: details about the programmes on offer (e.g. academic courses; bioethics seminars; fellowships); research portals on various branches of ethics and related topics; and information about the JCB's consultation services, news and events. The site also provides free access to the centre's monthly newsletter known as 'The JCB Voice'. These are presented in PDF, hence requiring Adobe Acrobat Reader for access. The centre is directed by Dr Ross Upshur, Associate Professor in the Departments of Family and Community Medicine and Public Health Services at the University of Toronto.
This website contains the full text of 'The Use of Animals in Higher Education: Problems, Alternatives, and Recommendations' (ISBN: 0-9658942-1-5). The monograph, presented in PDF, was written by Dr Jonathan Balcombe and published in 2000 by the Humane Society Press, USA. It argues against the dissection or harming of animals in institutions of higher education and highlights why these are ethically problematic and undesirable. Chapter headings include: The Quality and Integrity of Science Education; Sociological Issues; Animal Dissection in Education; Live-Animal Use in Education; Law and Policy Issues; Conclusion; and Summary of Recommendations. This website is maintained by the Humane Society of the United States and is a useful resource for those interested in the ethical issues surrounding animal experimentation.
This interesting online resource on the use of animals in science was jointly produced by the Australian and New Zealand Council for the Care of Animals in Research and Teaching Ltd (NZ) and the Animal Welfare Science and Bioethics Centre at Massey University in New Zealand. It explores questions such as why animals are used in research, teaching and testing; and how to minimise harm to animals when these activities are undertaken. It also provides a section that discusses the acceptability or otherwise of using animals in science, before outlining the legal and ethical controls currently in place in Australia and New Zealand. An annotated list of general further reading is given at the end of the work. This should be a useful resource for those undertaking comparative work in the fields of animal ethics and research ethics.
This website enables users to access the online version of the World Medical Association (WMA)'s Medical Ethics Manual (ISBN 92-990028-1-9). The work is organised into six chapters: Principal Features of Medical Ethics; Physicians and Patients; Physicians and Society; Physicians and Colleagues; Medical Research; and a general conclusion. The following are provided in the Appendix - a glossary of terms, a list of medical ethics resources on the Internet, statements on the inclusion and strengthening of ethics teaching in the curriculum of medical schools worldwide, and several case studies. The manual can be downloaded as a PDF from here without charge. Also provided are translated versions of the manual. Available copies to date include those in French; Spanish; Mandarin; Korean; Indonesian; German; Arabic; Turkish and Japanese. This resource would be useful to students and teachers of medical ethics.
The World Medical Association (WMA) was founded shortly after the Second World War. A representative body for physicians worldwide, it seeks to ensure that high standards are attained in medical education, medical science, medical ethics and the delivery of health care. Information on its history, organisational structure, membership, publications, meetings and events can be found on this home page. There is also an Ethics Unit section, which would be of particular interest to scholars and students of medical ethics. This contains useful information about the Association's ethics policies and activities; resources for medical ethics education and medical professionalism; and the latest version of the Declaration of Helsinki. The site can be accessed in English, French and Spanish.
This is the homepage of Yale University's Interdisciplinary Center for Bioethics. The center, which is directed by Dr David Smith, forms part of the university's Institution for Social and Policy Studies. This website makes available a number of interesting resources like: a collection of essays; the latest copy of 'Bioethics at Yale' and a calendar of events. It also contains details about the courses on offer; internship programs; working research groups; upcoming events; and projects like the Donaghue Initiative in Biomedical and Behavioral Research Ethics. The site provides a search engine and is easy to navigate.
'Your Genes, Your Choices: Exploring the Issues Raised by Genetic Research' is a book authored by Catherine Baker. Funded by the US Department of Energy, the work was written as part of the Science + Literacy for Health project of the American Association for the Advancement of Science (AAAS). It discusses the Human Genome Project and highlights the ethical, legal and social issues surrounding the project. Each of the book's eight chapters starts with a case study and the work as a whole was written in a very user-friendly fashion, making it accessible to and useful for students of medical ethics who do not come from a science background. This website allows free access to all the book's contents including its glossary, bibliography and image credits. These are available in both PDF and HTML formats.